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重构现实:家庭应对儿童癌症的策略

Reconstructing reality: family strategies for managing childhood cancer.

作者信息

Clarke-Steffen L

机构信息

College of Nursing, Arizona State University, Tempe 85287-2602, USA.

出版信息

J Pediatr Nurs. 1997 Oct;12(5):278-87. doi: 10.1016/S0882-5963(97)80045-0.

Abstract

The purpose was to describe strategies used by the family in response to childhood cancer and to relate those strategies to two different conceptual frameworks. A longitudinal, prospective, grounded theory study was conducted with a sample of 32 members of seven families who had a child recently diagnosed with cancer. All family members 5 years and older participated in three semistructured home interviews. Constant comparative analysis was used. The core process in which families engaged was reconstructing reality, using strategies of managing the flow of information, reorganizing roles, evaluating and shifting priorities, changing the future orientation, assigning meaning to the illness, and managing the therapeutic regimen. These strategies support a Family Management Style framework for viewing family management of pediatric cancer.

摘要

目的是描述家庭应对儿童癌症所采用的策略,并将这些策略与两个不同的概念框架联系起来。对七个家庭的32名成员进行了一项纵向、前瞻性的扎根理论研究,这些家庭中有孩子最近被诊断出患有癌症。所有5岁及以上的家庭成员参与了三次半结构化的家庭访谈。采用持续比较分析法。家庭参与的核心过程是重建现实,采用管理信息流、重新组织角色、评估和转移优先事项、改变未来取向、赋予疾病意义以及管理治疗方案等策略。这些策略支持了一个用于看待儿科癌症家庭管理的家庭管理风格框架。

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