Buetow S
University of Manchester, England.
J Med Ethics. 1998 Aug;24(4):243-7. doi: 10.1136/jme.24.4.243.
The degree and nature of patient involvement in consultations with health professionals influences problem and needs recognition and management, and public accountability. This paper suggests a framework for understanding the scope for patient involvement in such consultations. Patients are defined as co-producers of formal health services, whose potential for involvement in consultations depends on their personal rights, responsibilities and preferences. Patients' rights in consultations are poorly defined and, in the National Health Service (NHS), not legally enforceable. The responsibilities of patients are also undefined. I suggest that these are not to deny, of their own volition, the rights of others, which in consultations necessitate mutuality of involvement through information-exchange and shared decision-making. Preferences should be met insofar as they do not militate against responsibilities and rights.
患者在与医疗专业人员会诊过程中的参与程度和性质会影响问题及需求的识别、管理以及公共问责。本文提出了一个框架,用于理解患者在这类会诊中的参与范围。患者被定义为正规医疗服务的共同生产者,其参与会诊的潜力取决于他们的个人权利、责任和偏好。会诊中患者的权利界定不明确,在国民医疗服务体系(NHS)中也无法依法强制执行。患者的责任同样不明确。我认为,这些责任不应是患者自愿否认他人的权利,在会诊中这需要通过信息交流和共同决策来实现相互参与。只要偏好不违背责任和权利,就应予以满足。