Lam Lai-wah, Mackenzie Ann E
Department of Nursing, The Chinese University of Hong Kong.
Qual Health Res. 2002 Feb;12(2):223-37. doi: 10.1177/104973202129119856.
Chinese mothers' experiences of parenting a child with Down syndrome were explored through semistructured interviews with 18 key informants selected by purposive sampling. Seven major themes were identified: unexpected birth of an abnormal child, acceptance of the child, special needs of the child, worry about the future, knowledge deficit, effect on the marital relationship, and social restrictions. The types of stressors changed over time according to the child's age, and coping strategies varied accordingly. Strategies frequently used were avoidance, self-reliance, and seeking social support. The particular problems faced by mothers of children with Down syndrome in Hong Kong were discussed in view of the sociocultural background of the region and the highly competitive nature of its society.
通过对18名采用目的抽样法选取的关键信息提供者进行半结构化访谈，探讨了中国母亲养育唐氏综合征患儿的经历。确定了七个主要主题：异常孩子的意外出生、对孩子的接纳、孩子的特殊需求、对未来的担忧、知识不足、对婚姻关系的影响以及社会限制。压力源的类型随孩子年龄的增长而变化，应对策略也相应不同。常用的策略包括回避、自力更生和寻求社会支持。鉴于香港地区的社会文化背景及其社会的高度竞争性，讨论了香港唐氏综合征患儿母亲面临的特殊问题。
