信任、益处、满意度与负担：一项通过非裔美国人教会降低癌症风险的随机对照试验。
Trust, benefit, satisfaction, and burden: a randomized controlled trial to reduce cancer risk through African-American churches.
作者信息
Corbie-Smith Giselle, Ammerman Alice S, Katz Mira L, St George Diane Marie M, Blumenthal Connie, Washington Chanetta, Weathers Benita, Keyserling Thomas C, Switzer Boyd
机构信息
Department of Social Medicine, University of North Carolina at Chapel Hill, Wing D. CB#7240, Chapel Hill, NC 27599.
出版信息
J Gen Intern Med. 2003 Jul;18(7):531-41. doi: 10.1046/j.1525-1497.2003.21061.x.
BACKGROUND
Community-based participatory research (CBPR) approaches that actively engage communities in a study are assumed to lead to relevant findings, trusting relationships, and greater satisfaction with the research process.
OBJECTIVE
To examine community members' perceptions of trust, benefit, satisfaction, and burden associated with their participation.
DESIGN, SETTING, AND PARTICIPANTS: A randomized controlled trial tested a cancer prevention intervention in members of African-American churches. Data were collected at baseline and 1-year follow-up.
MEASUREMENTS
Subscales measured perception of trust in the research project and the project team, benefit from involvement with the project, satisfaction with the project and the team, and perception of burden associated with participation.
MAIN RESULTS
Overall, we found high levels of trust, perceived benefit, and satisfaction, and low perceived burden among community members in Partnership to Reach African Americans to Increase Smart Eating. In bivariate analyses, participants in the intervention group reported more perceived benefit and trust (P <.05). Participants in smaller churches reported more benefit, satisfaction and trust, while participants from churches without recent health activities perceived greater benefit, greater satisfaction, and lower burden with the project and the team (P <.05). Participants whose pastors had less educational attainment noted higher benefit and satisfaction; those whose pastors were making personal lifestyle changes noted higher benefit and satisfaction, but also reported higher burden (P <.05).
CONCLUSIONS
A randomized clinical trial designed with a CBPR approach was associated with high levels of trust and a perceived benefit of satisfaction with the research process. Understanding variations in responses to a research partnership will be helpful in guiding the design and implementation of future CBPR efforts.
背景
基于社区的参与性研究（CBPR）方法积极让社区参与研究，被认为能带来相关研究结果、信任关系以及对研究过程更高的满意度。
目的
考察社区成员对参与研究的信任、益处、满意度及负担的认知。
设计、场所与参与者：一项随机对照试验对非裔美国人教会成员进行癌症预防干预测试。在基线和1年随访时收集数据。
测量
分量表测量对研究项目和项目团队的信任认知、参与项目的益处、对项目和团队的满意度以及参与相关的负担认知。
主要结果
总体而言，我们发现“携手非裔美国人促进健康饮食伙伴关系”项目中的社区成员信任度高、感知到益处且满意度高，感知负担低。在双变量分析中，干预组参与者报告的感知益处和信任更多（P<.05）。较小教会的参与者报告的益处、满意度和信任更多，而来自近期无健康活动教会的参与者对项目和团队的感知益处更大、满意度更高且负担更低（P<.05）。牧师受教育程度较低的参与者报告的益处和满意度更高；牧师正在进行个人生活方式改变的参与者报告的益处和满意度更高，但也报告负担更高（P<.05）。
结论
采用CBPR方法设计的随机临床试验与高水平的信任以及对研究过程的满意度感知益处相关。了解对研究伙伴关系反应的差异将有助于指导未来CBPR工作的设计和实施。
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