Rydström Ingela, Dalheim-Englund Ann-Charlotte, Segesten Kerstin, Rasmussen Birgit H
Department of Health Sciences, University College of Borås, Borås, Sweden.
J Pediatr Nurs. 2004 Apr;19(2):85-94. doi: 10.1016/s0882-5963(03)00140-4.
This study identifies what influences and characterizes family relations in families of a child with asthma. Seventeen mothers of children aged between 6 and 16 years participated in audio-taped in-depth interviews. The researchers were inspired by grounded theory in data collection and data analysis. The core category that developed was being governed by disease-engendered uncertainty. The category mothers' availability was seen in two dimensions. The first dimension, mothers' being available for the child with asthma, created two subcategories: 1. control and 2. tight bonds. The second dimension, mothers' being less available for other family members, also created two subcategories: 3. being forsaken and 4. lack of understanding. Nursing implications are discussed in relation to the findings.
本研究确定了哮喘患儿家庭中影响家庭关系的因素及其特征。17位6至16岁孩子的母亲参与了录音深度访谈。研究人员在数据收集和数据分析过程中受到扎根理论的启发。形成的核心类别是受疾病引发的不确定性支配。母亲的可及性这一类别体现在两个维度上。第一个维度,母亲对哮喘患儿的可及性,产生了两个子类别:1. 控制;2. 紧密联系。第二个维度,母亲对其他家庭成员的可及性较低,也产生了两个子类别:3. 被抛弃感;4. 缺乏理解。结合研究结果对护理启示进行了讨论。