de Wit M, Delemarre-van de Waal H A, Pouwer F, Gemke R J B J, Snoek F J
Department of Medical Psychology, EMGO Institute, VU University Medical Center, Amsterdam, The Netherlands.
Arch Dis Child. 2007 May;92(5):434-9. doi: 10.1136/adc.2006.102236.
Particularly in chronic conditions, monitoring health related quality of life (HRQoL) of adolescents in clinical practice is increasingly advocated. We set out to identify and review the clinical utility of available generic and diabetes specific HRQoL questionnaires suitable for use in adolescents with type 1 diabetes. Four generic and five diabetes specific questionnaires were identified and evaluated. The responsiveness of most instruments warrants further research and standardisation of HRQoL measurement should be sought to facilitate comparisons across centres and countries. The PedsQL and the KINDL-R appear, at this time, to be the most suitable instruments.
特别是在慢性病方面，临床实践中越来越提倡对青少年的健康相关生活质量（HRQoL）进行监测。我们着手识别并综述适用于1型糖尿病青少年的通用和糖尿病特异性HRQoL问卷的临床效用。识别并评估了4种通用问卷和5种糖尿病特异性问卷。大多数工具的反应性值得进一步研究，应寻求HRQoL测量的标准化，以促进不同中心和国家之间的比较。目前，儿童生活质量量表（PedsQL）和儿童青少年生活质量问卷简版（KINDL-R）似乎是最合适的工具。
