为患有先天性心脏病的青年成人提供终身医疗护理的过渡。

Transitioning the young adult with congenital heart disease for life-long medical care.

作者信息

Fernandes Susan M, Landzberg Michael J

机构信息

Boston Adult Congenital Heart Service, Department of Cardiology, Children's Hospital and Brigham and Women's Hospital, Harvard Medical School, 300 Longwood Avenue, Boston, MA 02115, USA.

出版信息

Pediatr Clin North Am. 2004 Dec;51(6):1739-48, xi. doi: 10.1016/j.pcl.2004.07.006.

DOI:10.1016/j.pcl.2004.07.006

PMID:15561183

Abstract

Guidelines for the successful orchestration of transitioning of the adolescent and young and older adult patient with congenital heart disease to a health care system appropriate for their long-term congenital heart disease care and counseling appear necessary to improve patient and family confidence, education, therapy, life quality, and survival outcomes. Schema for care organization and delivery for adult patients with congenital heart disease remain primitive and largely unimplemented. The presence of a strong central care oversight organization and the establishment of a multi-institutional database to assist in assessment of care outcomes and guidelines appears requisite to these needs and for the establishment of transitioning guidelines for these patients as they assume a greater and deeper shared control of their futures with their caregivers.

摘要

对于患有先天性心脏病的青少年、青年及老年患者，制定成功的过渡指南，使其转入适合长期先天性心脏病护理与咨询的医疗保健系统，对于提高患者及家庭的信心、教育水平、治疗效果、生活质量和生存结局似乎是必要的。先天性心脏病成年患者的护理组织和提供模式仍然很原始，且大多未得到实施。为满足这些需求，并为这些患者制定过渡指南，因为他们与护理人员对自己的未来承担着更大、更深入的共同控制权，似乎需要一个强大的中央护理监督组织，并建立一个多机构数据库来协助评估护理结果和指南。