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“被知晓”:患者对癌症护理中人际联系动态的看法

'Being known': patients' perspectives of the dynamics of human connection in cancer care.

作者信息

Thorne Sally E, Kuo Margot, Armstrong Elizabeth-Anne, McPherson Gladys, Harris Susan R, Hislop T Gregory

机构信息

University of British Columbia School of Nursing, Vancouver, British Columbia, Canada.

出版信息

Psychooncology. 2005 Oct;14(10):887-98; discussion 899-900. doi: 10.1002/pon.945.

Abstract

In the context of a large study of effective and ineffective cancer care communications from the perspective of patients with cancer, the authors documented the pervasiveness of the desire for human connection. Analyzing accounts from 200 patients with diverse cancer experiences, they concluded that, while anonymity is generally antithetical to a comfortable cancer care encounter, there are wide variations in what it means to 'be known' in a meaningful way. In this discussion, a description of the dynamics of being known and not being known within the cancer care encounter is presented, and a range of variations considered. By illuminating the manner in which communication influences human connection within the cancer care context, the findings of this study challenge some current research directions and propose alternative conceptualizations that might better orient future inquiry to enhance practice.

摘要

在一项从癌症患者角度对有效和无效癌症护理沟通进行的大型研究中,作者记录了对人际联系的普遍渴望。通过分析200名有不同癌症经历患者的描述,他们得出结论,虽然匿名通常与舒适的癌症护理体验相悖,但“被真正了解”的含义存在很大差异。在本讨论中,呈现了癌症护理过程中被了解和不被了解的动态描述,并考虑了一系列差异。通过阐明沟通在癌症护理背景中影响人际联系的方式,本研究结果对当前一些研究方向提出了挑战,并提出了可能更好地引导未来研究以改进实践的替代概念。

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