King Deborah A, Quill Timothy
Department of Psychiatry and Center for Palliative Care and Ethics, University of Rochester School of Medicine and Dentistry, Rochester, New York 14642-8409, USA.
J Palliat Med. 2006 Jun;9(3):704-15. doi: 10.1089/jpm.2006.9.704.
Comprehensive palliative care requires that family concerns are understood and addressed. Yet medical professionals frequently lack formal training in family systems concepts and, therefore, may be unprepared to engage in family-inclusive approaches to treatment. In order to address this problem, we selectively review the literature on working with families in end-of-life settings and offer specific recommendations for involving families as collaborators in the care process. Based on existing theory regarding the development of family communication styles and problem-solving abilities, we propose a tentative framework for understanding and responding to a range of common family dynamics encountered in palliative care and hospice settings. In light of the lack of empirical studies in this area, we conclude with recommendations for future research.
全面的姑息治疗要求理解并解决患者家庭的问题。然而，医学专业人员常常缺乏关于家庭系统概念的正规培训，因此可能没有准备好采用包含家庭的治疗方法。为了解决这个问题，我们有选择地回顾了关于在临终关怀环境中与家庭合作的文献，并提出了让家庭作为护理过程中的合作者参与进来的具体建议。基于关于家庭沟通方式和解决问题能力发展的现有理论，我们提出了一个初步框架，用于理解和应对姑息治疗和临终关怀环境中常见的一系列家庭动态。鉴于该领域实证研究的匮乏，我们最后给出了未来研究的建议。
