Jennes-Coussens Marieke, Magill-Evans Joyce, Koning Cyndie
Artevelde Hogeschool Gent, Belgium.
Autism. 2006 Jul;10(4):403-14. doi: 10.1177/1362361306064432.
Factors influencing quality of life for persons with Asperger syndrome are not yet understood. Men, ages 18 to 21, completed the World Health Organization Quality Of Life measure, the Perceived Support Network Inventory, and a semi-structured interview. Asperger syndrome affects quality of life beyond the obvious social impact. The 12 men with Asperger syndrome reported a significantly lower social and physical quality of life than did the 13 men in the control group. Education, living arrangements, and number of friends were remarkably similar between groups. Those with Asperger syndrome had less positive employment experiences and showed more preference for solitary activities. Interventions need to be based on a holistic model.
目前尚不清楚影响阿斯伯格综合征患者生活质量的因素。18至21岁的男性完成了世界卫生组织生活质量测评、感知支持网络量表以及一次半结构化访谈。阿斯伯格综合征对生活质量的影响不止于明显的社会影响。12名患有阿斯伯格综合征的男性报告称，其社会和身体生活质量显著低于对照组中的13名男性。两组在教育程度、生活安排和朋友数量方面非常相似。患有阿斯伯格综合征的人就业经历较不乐观，且更倾向于独自活动。干预措施需要基于整体模型。
