Grindle Corinna F, Kovshoff Hanna, Hastings Richard P, Remington Bob
Bangor University, Gwynedd, UK.
J Autism Dev Disord. 2009 Jan;39(1):42-56. doi: 10.1007/s10803-008-0597-z. Epub 2008 Jun 6.
Although much research has documented the benefits to children with autism of early intensive behavioral intervention (EIBI), little has focused on the impact of EIBI on families. Using a semi-structured format, we interviewed 53 parents whose children had received 2 years of EIBI to obtain detailed first person accounts of the perceived benefits and pitfalls of running a home program, and the impact of EIBI on family life and support systems. In general, parents were positive about EIBI, its benefits for them, their child, and the broader family. Interviews also, however, revealed some of the more challenging aspects of managing home-based EIBI. The implications of these findings for more supportive interventions for families on home programs are discussed.
尽管大量研究已证明早期密集行为干预(EIBI)对自闭症儿童有益,但很少有研究关注EIBI对家庭的影响。我们采用半结构化形式,采访了53位孩子接受过两年EIBI的家长,以获取他们第一人称视角的详细描述,内容涉及实施家庭训练计划所感受到的益处和困难,以及EIBI对家庭生活和支持系统的影响。总体而言,家长们对EIBI、其对他们自己、孩子以及整个家庭的益处持积极态度。然而,访谈也揭示了实施家庭EIBI过程中一些更具挑战性的方面。本文讨论了这些研究结果对为实施家庭训练计划的家庭提供更具支持性干预措施的启示。