Inner East Melbourne Medicare Local, Burwood East, Victoria, Australia Monash University Department of General Practice, Clayton, Victoria, Australia.
School of Health Information Science, University of British Columbia, Victoria, British Columbia, Canada ASE Consulting Pty Ltd., London, UK National E-Health Transition Authority, Sydney, New South Wales, Australia.
J Am Med Inform Assoc. 2014 Jul-Aug;21(4):707-13. doi: 10.1136/amiajnl-2013-002068. Epub 2014 Mar 20.
On July 1, 2012 Australia launched a personally controlled electronic health record (PCEHR) designed around the needs of consumers. Using a distributed model and leveraging key component national eHealth infrastructure, the PCEHR is designed to enable sharing of any health information about a patient with them and any other health practitioner involved in their care to whom the patient allows access. This paper discusses the consumer-facing part of the program.
Design of the system was through stakeholder consultation and the development of detailed requirements, followed by clinical design assurance.
Patients are able to access any posted information through a web-accessible 'consumer portal.' Within the portal they are able to assert access controls on all or part of their record. The portal includes areas for consumers to record their own personal information.
The PCEHR has the potential to transform the ability of patients to actively engage in their own healthcare, and to enable the emerging partnership model of health and healthcare in medicine. The ability to access health information traditionally kept within the closed walls of institutions also raises challenges for the profession, both in the language clinicians choose and the ethical issues raised by the changed roles and responsibilities.
The PCEHR is aimed at connecting all participants and their interventions, and is intended to become a system-wide activity.
2012 年 7 月 1 日，澳大利亚推出了一款以消费者需求为设计核心的个人化电子健康记录（PCEHR）。该 PCEHR 采用分布式模型，并利用关键的国家电子健康基础设施组件，旨在实现患者与其允许访问其健康信息的任何医疗从业者之间任何健康信息的共享。本文讨论了该计划中面向消费者的部分。
系统的设计是通过利益相关者咨询和详细需求的制定，以及临床设计保证来完成的。
患者可以通过可通过网络访问的“消费者门户”访问任何发布的信息。在门户内，他们可以对其记录的全部或部分内容进行访问控制。该门户包括消费者记录自身个人信息的区域。
PCEHR 有可能改变患者积极参与自身医疗保健的能力，并使医疗领域新兴的健康和医疗合作模式成为可能。能够访问传统上保存在医疗机构封闭墙内的健康信息，也给专业人员带来了挑战，包括临床医生选择的语言以及角色和职责变化所引发的道德问题。
PCEHR 的目的是连接所有参与者及其干预措施，并旨在成为一个全系统的活动。
