Grinyer Anne
Division of Health Research, Lancaster University, Alexandra Square, Lancaster LA1 4YT, UK.
Eur J Oncol Nurs. 2009 Jul;13(3):200-6. doi: 10.1016/j.ejon.2009.04.002. Epub 2009 Jul 3.
To compare and contrast the issues raised in narrative data gathered from parents of teenagers and young adults with cancer with interview data gathered from young adults being treated for cancer.
A narrative correspondence method elicited contributions from the parents of 28 young adults with cancer. In-depth qualitative interviews were undertaken with 28 young adults in treatment for cancer or soon after their treatment.
The secondary analysis of the two data sets illuminates contrasting familial perspectives. While some of the topics raised by parents are also addressed by young people, their perspectives differ thus offering a 'mirror image' of the same issue. The contrast in priorities can contribute to stress within the family and can increase the danger of conflict over key decisions that may impact upon the health of the young adult with cancer.
If the potential conflicts are anticipated and understood and as a consequence handled with skill by professionals in the setting of care, this can benefit family relationships which can be thrown into crisis by the illness. It is thus important that a model of care that incorporates such an understanding is widely implemented in order to mitigate the negative impact on family dynamics when cancer is diagnosed in young adulthood.
比较和对比从青少年及青年癌症患者父母处收集的叙述性数据中提出的问题，与从正在接受癌症治疗的青年处收集的访谈数据中提出的问题。
采用叙述性通信方法，征集了28名青年癌症患者父母的意见。对28名正在接受癌症治疗或治疗后不久的青年进行了深入的定性访谈。
对两组数据集的二次分析揭示了不同的家庭观点。虽然父母提出的一些话题年轻人也有涉及，但他们的观点不同，从而为同一问题提供了一个“镜像”。优先事项的差异可能会导致家庭压力，并增加在可能影响患癌青年健康的关键决策上发生冲突的风险。
如果能够预见并理解潜在冲突，并因此由护理机构的专业人员巧妙处理，这将有利于家庭关系，因为疾病可能使家庭关系陷入危机。因此，重要的是广泛实施一种包含这种理解的护理模式，以减轻在青年期诊断出癌症时对家庭动态的负面影响。
