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管理生物医学不确定性:技术科学的疾病认同。

Managing biomedical uncertainty: the technoscientific illness identity.

机构信息

Department of Sociology, Texas Woman's University, Denton, Texas 76204, United States.

出版信息

Sociol Health Illn. 2009 Nov;31(7):1059-76. doi: 10.1111/j.1467-9566.2009.01183.x. Epub 2009 Jul 9.

Abstract

This paper analyses how the biomedical uncertainty of breast cancer contributes to the development of a new type of illness identity that is grounded in biomedical knowledge, advanced technology, and biomedical health and risk surveillance. The technoscientific identity (TSI) develops through the application of sciences and technologies to one's sense of self. Analysing narrative data from 60 in-depth interviews with women diagnosed with breast cancer, this research demonstrates how women diagnosed with breast cancer develop and maintain TSIs through four processes: (1) immersion in professional biomedical knowledge, (2) locating themselves within a technoscientific framework, (3) receiving support for the emerging TSI from the medical system and support networks, and (4) eventually prioritising their biomedical classifications over their suffering. Developing a TSI enables people to make sense of biomedical information, make decisions, and manage medical processes and relationships in the face of biomedical and personal uncertainty even as it extends the reach of technoscience and biomedicalisation.

摘要

本文分析了乳腺癌的生物医学不确定性如何导致一种新型疾病认同的发展,这种认同基于生物医学知识、先进技术以及生物医学健康和风险监测。技术科学认同(TSI)通过将科学和技术应用于自我意识而发展。本研究通过对 60 名被诊断患有乳腺癌的女性的深入访谈的叙事数据进行分析,展示了被诊断患有乳腺癌的女性如何通过四个过程来发展和维持 TSI:(1)沉浸在专业的生物医学知识中;(2)在技术科学框架内定位自己;(3)从医疗系统和支持网络获得对新兴 TSI 的支持;(4)最终将自己的生物医学分类置于痛苦之上。即使在生物医学和个人不确定性面前,发展 TSI 也可以使人们理解生物医学信息、做出决策以及管理医疗过程和关系,同时扩展技术科学和生物医学化的范围。

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