照顾者前列腺护理问卷（PCQ-C）：信度、效度和可接受性。

The Prostate Care Questionnaire for Carers (PCQ-C): reliability, validity and acceptability.

机构信息

Department of Health Sciences, University of Leicester, Leicester, UK.

出版信息

BMC Health Serv Res. 2009 Dec 11;9:229. doi: 10.1186/1472-6963-9-229.

DOI:10.1186/1472-6963-9-229

PMID:20003338

原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC2797790/

Abstract

BACKGROUND

Patient experience is commonly monitored in evaluating and improving health care, but the experience of carers (partners/relatives/friends) is rarely monitored even though the role of carers can often be substantial. For carers to fulfil their role it is necessary to address their needs. This paper describes an evaluation of the reliability, validity and acceptability of the PCQ-C, a newly developed instrument designed to measure the experiences of carers of men with prostate cancer.

METHODS

The reliability, acceptability and validity of the PCQ-C were tested through a postal survey and interviews with carers. The PCQ-C was posted to 1087 prostate cancer patients and patients were asked to pass the questionnaire on to their carer. Non-responders received one reminder. To assess test-retest reliability, 210 carers who had responded to the questionnaire were resent it a second time three weeks later. A subsample of nine carers from patients attending one hospital took part in qualitative interviews to assess validity and acceptability of the PCQ-C. Acceptability to service providers was evaluated based on four hospitals' experiences of running a survey using the PCQ-C.

RESULTS

Questionnaires were returned by 514 carers (47.3%), and the majority of questions showed less than 10% missing data. Across the sections of the questionnaire internal consistency was high (Cronbach's alpha ranging from 0.80 to 0.89), and test-retest stability showed moderate to high stability (intraclass correlation coefficients ranging from 0.52 to 0.83). Interviews of carers indicated that the PCQ-C was valid and acceptable. Feedback from hospitals indicated that they found the questionnaire useful, and highlighted important considerations for its future use as part of quality improvement initiatives.

CONCLUSIONS

The PCQ-C has been found to be acceptable to carers and service providers having been used successfully in hospitals in England. It is ready for use to measure the aspects of care that need to be addressed to improve the quality of prostate cancer care, and for research.

摘要

背景

患者体验通常用于评估和改善医疗保健，但很少监测照顾者（伴侣/亲属/朋友）的体验，尽管照顾者的角色通常很重要。为了让照顾者履行他们的角色，有必要满足他们的需求。本文描述了一种新开发的工具 PCQ-C 的可靠性、有效性和可接受性的评估，该工具旨在测量前列腺癌男性患者照顾者的体验。

方法

通过邮寄调查和对照顾者的访谈来测试 PCQ-C 的可靠性、可接受性和有效性。将 PCQ-C 寄给 1087 名前列腺癌患者，并要求患者将问卷交给他们的照顾者。未回复者收到一条提醒。为了评估测试-重测信度，210 名已经回复问卷的照顾者在三周后再次收到问卷。从一家医院就诊的患者中抽取了 9 名照顾者进行定性访谈，以评估 PCQ-C 的有效性和可接受性。根据四家医院使用 PCQ-C 进行调查的经验，评估了服务提供者的可接受性。

结果

有 514 名照顾者（47.3%）回复了问卷，大多数问题的缺失数据不到 10%。问卷各部分的内部一致性很高（克朗巴赫的 alpha 系数在 0.80 到 0.89 之间），测试-重测稳定性显示出中等至高的稳定性（组内相关系数在 0.52 到 0.83 之间）。照顾者的访谈表明，PCQ-C 是有效和可接受的。医院的反馈表明，他们认为该问卷有用，并强调了未来将其作为质量改进举措的一部分使用时需要考虑的重要因素。