Departamento de Psicología Biológica y de la Salud, Facultad de Psicología, Universidad Autónoma de Madrid, Madrid, Spain.
Haemophilia. 2011 Sep;17(5):e901-5. doi: 10.1111/j.1365-2516.2011.02578.x. Epub 2011 Jun 7.
Adherence is a complex and multifaceted behaviour. The study of factors influencing adherence behaviour, including difficulties with treatment and treatment satisfaction (TS), are still needed. This research report describes different questions related to treatment adherence, focusing on perceived barriers and difficulties with treatment, satisfaction with treatment and risk factors that help explain the experience of difficulties and low TS. A cross-sectional study assessing 121 Spanish adult patients (range 17-70) collected information about the characteristics of treatment, perceived barriers to treatment, difficulties and satisfaction with treatment and negative affect. The results show differences in difficulties and satisfaction with treatment depending on haemophilia severity level and describe an association of negative affect with the greater experience of treatment difficulties and lower TS. In conclusion, perceived barriers, level of skills related to self-treatment, haemophilia severity level and affective state are important predictors of treatment difficulties and satisfaction with treatment and these should be taken into account in strategies for improving compliance and maintaining quality of life.
依从性是一种复杂且多方面的行为。仍需要研究影响依从性行为的因素，包括治疗困难和治疗满意度（TS）。本研究报告描述了与治疗依从性相关的不同问题，重点关注治疗感知障碍和困难、治疗满意度以及有助于解释困难和低 TS 体验的风险因素。一项横断面研究评估了 121 名西班牙成年患者（年龄 17-70 岁），收集了有关治疗特点、治疗感知障碍、困难和满意度以及负性情绪的信息。结果表明，治疗难度和满意度存在差异，取决于血友病严重程度，并描述了负性情绪与更大的治疗困难体验和较低的 TS 之间的关联。总之，治疗感知障碍、与自我治疗相关的技能水平、血友病严重程度和情绪状态是治疗困难和治疗满意度的重要预测因素，在提高依从性和维持生活质量的策略中应考虑这些因素。
