癫痫患儿的生活质量。
Quality of life in children with epilepsy.
作者信息
Nadkarni Jayashree, Jain Arti, Dwivedi Rashmi
机构信息
Department of Pediatrics, Gandhi Medical College and Kamla Nehru Hospital, Bhopal, Madhya Pradesh, India.
出版信息
Ann Indian Acad Neurol. 2011 Oct;14(4):279-82. doi: 10.4103/0972-2327.91948.
Abstract
BACKGROUND
Epilepsy is a chronic medical condition with many co-morbid features. It has been observed that children with epilepsy (CWE) have a compromised quality of life (QOL).
OBJECTIVE
To assess the QOL in CWE and to study the various factors affecting QOL among CWE.
MATERIALS AND METHODS
The sample consisted of 102 CWE aged 5-15 years of either sex. QOL was measured by Quality of Life in Childhood Epilepsy (QOLCE) questionnaire, a 76-item, parent-reported questionnaire. Cronbach alpha was used to determine the internal consistency of the subscales and Pearson correlation to determine construct validity. The t-test and analysis of variance were used to compare mean QOLCE scores.
RESULTS
Factors affecting QOL included age, place of residence, socioeconomic condition, maternal education, seizure type and frequency and number of antiepileptic drugs.
CONCLUSION
CWE have a relatively compromised QOL and comprehensive care needs to go beyond the attempt of controlling seizures.
摘要
背景
癫痫是一种具有多种共病特征的慢性疾病。据观察，癫痫患儿的生活质量受到损害。
目的
评估癫痫患儿的生活质量，并研究影响癫痫患儿生活质量的各种因素。
材料与方法
样本包括102名年龄在5至15岁之间的癫痫患儿，性别不限。生活质量通过《儿童癫痫生活质量》（QOLCE）问卷进行测量，这是一份由家长报告的76项问卷。使用Cronbach阿尔法系数来确定子量表的内部一致性，并使用皮尔逊相关性来确定结构效度。采用t检验和方差分析来比较QOLCE平均得分。
结果
影响生活质量的因素包括年龄、居住地点、社会经济状况、母亲教育程度、癫痫发作类型和频率以及抗癫痫药物的数量。
结论
癫痫患儿的生活质量相对受损，综合护理需要超越控制癫痫发作的尝试。
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