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在一家皮肤科参考中心接受治疗的麻风反应状态患者的生活质量评估。

Assessment of quality of life of patients with leprosy reactional states treated in a dermatology reference center.

作者信息

Costa Marina Dias, Terra Fábio de Souza, Costa Rosane Dias, Lyon Sandra, Costa Ana Maria Duarte Dias, Antunes Carlos Maurício de Figueiredo

机构信息

Centro de Medicina Especializada, Pesquisa e Ensino, Belo Horizonte, MG, Brasil.

出版信息

An Bras Dermatol. 2012 Jan-Feb;87(1):26-35. doi: 10.1590/s0365-05962012000100003.

Abstract

BACKGROUND

Disabilities and deformities resulting from reactive outbreaks of leprosy can cause many problems for the patients, interfering with their quality of life.

OBJECTIVES

To assess the quality of life of patients with leprosy reactional states identified at the Reference Center in Belo Horizonte - MG.

METHODS

This was an epidemiological cross-sectional descriptive and analytical study, involving 120 patients in treatment for leprosy reactional states, from December 2007 to March 2008, held at the Dermatology outpatients clinic of the Hospital Eduardo de Menezes from FHEMIG, BH. We used two instruments for the socio-demographic, economic and clinical variables and a generic instrument WHOQOL WHO. The data were tabulated in SPSS and analyzed using the mean score with the application of statistical tests (p <0.05).

RESULTS

We found that the median age of the patients was 48 years, most were males, married, from cities around BH, with incomplete elementary school, retired or pensioner, and with a family income of two minimum wages. Most of them reported that the disease interfered a great deal with their professional activities and leisure. In the assessment of QoL, the lowest rating was observed in the physical domain and the highest was observed in the psychological and social relations. The internal consistency of WHO-QOL-bref was acceptable to the facets and domains.

CONCLUSIONS

Leprosy causes suffering that goes beyond the pain and discomfort strictly related to the physical damage, with great social and psychological impact.

摘要

背景

麻风反应性发作导致的残疾和畸形会给患者带来诸多问题,影响他们的生活质量。

目的

评估在贝洛奥里藏特市(米纳斯吉拉斯州)参考中心确诊的麻风反应状态患者的生活质量。

方法

这是一项流行病学横断面描述性和分析性研究,于2007年12月至2008年3月在贝洛奥里藏特市FHEMIG的爱德华多·德·梅内塞斯医院皮肤科门诊进行,涉及120例正在接受麻风反应状态治疗的患者。我们使用了两种工具来收集社会人口学、经济和临床变量数据,以及一种通用工具——世界卫生组织生活质量量表(WHOQOL)。数据在SPSS中制表,并使用平均得分进行分析,应用统计检验(p<0.05)。

结果

我们发现患者的中位年龄为48岁,大多数为男性,已婚,来自贝洛奥里藏特市周边城市,小学未毕业,已退休或领取养老金,家庭收入为两份最低工资。他们中的大多数人报告称,该疾病对其职业活动和休闲产生了很大影响。在生活质量评估中,身体领域得分最低,心理和社会关系领域得分最高。世界卫生组织生活质量量表简表(WHO-QOL-bref)各方面和领域的内部一致性可以接受。

结论

麻风造成的痛苦不仅限于与身体损伤直接相关的疼痛和不适,还具有重大的社会和心理影响。

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