Clinical Psychology Unit, Government College University, Lahore, 54000, Pakistan.
Health Qual Life Outcomes. 2012 May 18;10:52. doi: 10.1186/1477-7525-10-52.
The purpose of the study was to evaluate and compare the HRQOL of paediatric cancer in comparison to the healthy children across age groups, using PedsQLTM 4.0 Generic Core Scales and the PedsQL™ Cancer Module.
The PedsQLTM 4.0 Generic Core Scales and PedsQL Cancer Module 3.0 were administered on 56 children including 26 cancer patients and 30 healthy children while employing self and proxy report forms. Furthermore, the results were compared with their healthy comparison group.
The results indicated a significant relationship between HRQOL reports of cancer patients and their parents. However, the mean of paediatric cancer patients is significantly lower as compare to their healthy comparison group. The mean of proxy report is lower overall on both PedsQL and PedsQL cancer module reports.
Conclusively, overall HRQOL of cancer patients was lower than healthy children but it is quite similar to their parents' perception. Whereas, the parental mean on PedsQL and PedsQL 3.0 Cancer Module are significantly low. The study indicated a marked difference between cancer patients and healthy children's HRQOL perception and unfortunately in country like Pakistan where cancer is on increase, no significant work has yet been done to explore this area of research. The present study highlighted the need to focus on the particular psychological health services required to serve the physically challenged population.
本研究旨在通过使用 PedsQLTM 4.0 通用核心量表和 PedsQLTM 癌症模块，评估和比较儿科癌症患儿与各年龄段健康儿童的 HRQOL。
对 56 名儿童（包括 26 名癌症患儿和 30 名健康儿童）进行 PedsQLTM 4.0 通用核心量表和 PedsQL 癌症模块 3.0 测试，采用自我报告和代理报告形式。此外，还将结果与他们的健康对照组进行了比较。
结果表明，癌症患儿及其父母的 HRQOL 报告之间存在显著关系。然而，与健康对照组相比，儿科癌症患儿的平均得分明显较低。总体而言，在 PedsQL 和 PedsQL 癌症模块报告中，代理报告的平均值均较低。
总之，癌症患儿的总体 HRQOL 低于健康儿童，但与父母的认知相当。然而，父母在 PedsQL 和 PedsQL 3.0 癌症模块上的平均得分明显较低。研究表明，癌症患儿和健康儿童的 HRQOL 感知存在显著差异，不幸的是，在像巴基斯坦这样癌症发病率不断上升的国家，尚未开展任何有意义的工作来探索这一研究领域。本研究强调需要关注为身体残疾人群提供特定的心理健康服务。
