Gibbins Jonathan, Steinhardt Karen, Beinart Helen
Great Ormond Street Hospital, London, UK.
J Pediatr Oncol Nurs. 2012 Sep-Oct;29(5):253-71. doi: 10.1177/1043454212452791.
A growing body of research has investigated the experiences of parents of children treated for cancer. Until recently, a qualitative review has not been possible because of the lack of qualitative studies in this area. However, this has changed in recent years. The purpose of this systematic review is to summarize the findings from qualitative studies on the experiences of mothers and fathers from different countries and cultures. Twenty-eight qualitative studies were found to meet the inclusion criteria for this review. Key findings included the parents' desire to feel in control, the need to continuously adjust to the unpredictable nature of cancer treatment, the adoption of various coping styles, emotional and practical support being valued, and gender and cultural differences being reported. Clinical implications include the need for health care professionals to provide clear information and aid the sense of control, care to be individualized with gender and cultural backgrounds taken into account, and fathers' needs to be acknowledged and met. Other implications for clinical practice and future research are discussed.
越来越多的研究探讨了癌症患儿父母的经历。直到最近,由于该领域缺乏定性研究,还无法进行定性综述。然而,近年来这种情况已经改变。本系统综述的目的是总结来自不同国家和文化背景的母亲和父亲经历的定性研究结果。发现有28项定性研究符合本综述的纳入标准。主要发现包括父母渴望掌控局面、需要不断适应癌症治疗的不可预测性、采用各种应对方式、重视情感和实际支持,以及报告存在性别和文化差异。临床意义包括医疗保健专业人员需要提供清晰的信息并帮助增强掌控感,考虑性别和文化背景进行个性化护理,以及承认并满足父亲的需求。还讨论了对临床实践和未来研究的其他意义。