Department of Internal Medicine and Rheumatology, Medical University of Silesia, Katowice, Poland.
Rheumatol Int. 2013 Nov;33(11):2899-901. doi: 10.1007/s00296-012-2505-2. Epub 2012 Sep 15.
We studied 54 patients with ankylosing spondylitis with questionnaire in order to determine their view on threat to quality of their life related to the disease. We have show that pain and significant disability are the main threats associated with the disease in view of the patients. Social aspects (losing of job or decreasing of income) are also important for the patients, while management of the disease is not considered as arduous. The results of patients' opinion may be helpful in designing of educational programs for them.
我们对 54 例强直性脊柱炎患者进行了问卷调查,以确定他们对与疾病相关的生活质量威胁的看法。我们发现,疼痛和严重的残疾是患者认为与疾病相关的主要威胁。社会方面(失业或收入减少)对患者也很重要,而疾病的管理则被认为不那么困难。患者意见的结果可能有助于为他们设计教育计划。