Centre for Education Research & Innovation, Schulich School of Medicine & Dentistry, University of Western Ontario, London, Ontario, Canada.
J Pain Symptom Manage. 2013 May;45(5):901-11. doi: 10.1016/j.jpainsymman.2012.04.006. Epub 2012 Sep 25.
There is a growing call to integrate palliative care for patients with advanced heart failure (HF). However, the knowledge to inform integration efforts comes largely from interview and survey research with individual patients and providers. This work has been critically important in raising awareness of the need for integration, but it is insufficient to inform solutions that must be enacted not by isolated individuals but by complex care teams. Research methods are urgently required to support systematic exploration of the experiences of patients with HF, family caregivers, and health care providers as they interact as a care team.
To design a research methodology that can support systematic exploration of the experiences of patients with HF, caregivers, and health care providers as they interact as a care team.
This article describes in detail a methodology that we have piloted and are currently using in a multisite study of HF care teams.
We describe three aspects of the methodology: the theoretical framework, an innovative sampling strategy, and an iterative system of data collection and analysis that incorporates four data sources and four analytical steps.
We anticipate that this innovative methodology will support groundbreaking research in both HF care and other team settings in which palliative integration efforts are emerging for patients with advanced nonmalignant disease.
人们越来越呼吁为晚期心力衰竭（HF）患者提供姑息治疗。然而，为推动姑息治疗整合所需要的知识主要来自于对个体患者和提供者的访谈和调查研究。这些工作对于提高对整合必要性的认识至关重要，但不足以提供必须由复杂的护理团队而非孤立个体来实施的解决方案。迫切需要研究方法来支持系统地探索 HF 患者、家庭照顾者和医疗保健提供者作为护理团队互动时的体验。
设计一种研究方法，以支持系统地探索 HF 患者、照顾者和医疗保健提供者作为护理团队互动时的体验。
本文详细描述了我们已经试行并正在一项多站点 HF 护理团队研究中使用的方法。
我们描述了该方法的三个方面：理论框架、创新的抽样策略以及包含四个数据源和四个分析步骤的迭代式数据收集和分析系统。
我们预计，这种创新的方法将支持 HF 护理以及其他姑息整合工作正在为晚期非恶性疾病患者开展的团队环境中的开创性研究。
