Author affiliations: Department of Psychology, University of Houston, Texas (Mr Yeung); School of Public Health (Dr Lau) and Department of Psychology (Dr Mak), Chinese University of Hong Kong; Centre for Medical Anthropology and Behavioral Health, Sun Yat Sen University, Guangzhou (Dr Lau); Department of Applied Social Studies, City University of Hong Kong (Dr Yu); Department of Paediatrics, Prince of Wales Hospital, Hong Kong (Dr Chu, Mr Shing, and Drs Leung, Li, and Fok), China.
Cancer Nurs. 2013 Nov-Dec;36(6):463-73. doi: 10.1097/NCC.0b013e31827028c8.
The Pediatric Quality of Life Inventory (PedsQL) 4.0 Generic Core Scales are commonly used to assess health-related quality of life of healthy children and pediatric patients. Validation of the Generic Core Scales among Chinese pediatric cancer patients has not been reported in the literature. The scales can serve to measure different quality-of-life domains that are not captured by the PedsQL Cancer Module.
Psychometric properties of the Chinese version of the PedsQL 4.0 among pediatric cancer patients and their caretakers were examined.
The Generic Core Scales were administered to 335 pairs of pediatric cancer patients (aged 8-18 years) and their caretakers in Hong Kong.
A 5-factor structure (physical, emotional, social, school-related cognitive function, and missed school) was identified in the patient and proxy versions of the scales using confirmatory factor analysis. Both versions of the total scale reported Cronbach α's of .90 or greater, with almost all subscales reporting α's of .70 or greater. Test-retest reliability at 2 weeks was acceptable (intraclass correlations ≥0.60) for a majority of subscales. Agreement between patients' and caretakers' ratings was medium.
The scales demonstrated acceptable psychometric properties and construct validity.
This study validated the Chinese version of the Generic Core Scales among pediatric cancer patients and their caretakers, which supports the future use of the scales in clinical settings. The Generic Core Scales can also be supplementary to the PedsQL Cancer Module for measuring multiple domains of quality of life in cancer population.
儿科生活质量量表（PedsQL）4.0 通用核心量表常用于评估健康儿童和儿科患者的健康相关生活质量。目前文献中尚未报道中文版 PedsQL 4.0 通用核心量表在儿科癌症患者中的验证情况。这些量表可用于衡量 PedsQL 癌症模块无法捕捉到的不同生活质量领域。
考察中文版 PedsQL 4.0 在儿科癌症患者及其照顾者中的心理测量学特性。
在香港，对 335 对儿科癌症患者（8-18 岁）及其照顾者进行了通用核心量表的评估。
通过验证性因子分析，在患者和代理版本的量表中确定了 5 个因子结构（身体、情感、社会、与学校相关的认知功能和缺课）。两个版本的总量表的 Cronbach α 值均大于或等于.90，几乎所有子量表的 α 值均大于或等于.70。大多数子量表的 2 周重测信度（组内相关系数≥0.60）可接受。患者和照顾者评分之间的一致性为中等。
该量表具有可接受的心理测量学特性和结构效度。
本研究验证了中文版 PedsQL 4.0 通用核心量表在儿科癌症患者及其照顾者中的应用，支持了该量表在临床实践中的未来应用。通用核心量表也可作为 PedsQL 癌症模块的补充，用于测量癌症人群的多个生活质量领域。
