Department of Growth and Development, Capital Institute of Pediatrics, Ya-Bao Road, Chao-Yang District, Beijing, China.
Health Qual Life Outcomes. 2013 May 30;11:87. doi: 10.1186/1477-7525-11-87.
The quality of life in children with short stature was rarely studied in China, so we explore these children's quality of life and psychometric properties of the Chinese version of the Pediatric Quality of Life Inventory 4.0(PedsQL4.0) Generic Core Scales among children with short stature.
A total of 201 children aged 8 ~ 18 years from the short stature clinic and other clinics of capital institute of pediatrics attended this study. The questionnaires include demographic information and PedsQL4.0 generic core scales. According to children's height, we divided them into three groups: short stature, normal short and normal group, then compared the score of scales by the height category. Moreover, we analyzed the reliability and validity of PedsQL4.0 generic core scales in these 201 children.
The child self-report total PedsQL mean score, for the short stature, normal short and normal groups were 77.77 ± 9.69, 83.50 ± 8.56 and 87.36 ± 7.23; the parent-proxy total PedsQL mean score were 77.62 ± 10.50, 82.69 ± 8.35 and 84.91 ± 9.96 respectively. Both for children self- and parent proxy-reports, the Cronbach's α coefficients of total scale, psychosocial health and social functioning ranged between 0.74 and 0.80, it ranged between 0.51 and 0.66 in other dimensions. For child self-reports, the correlation coefficients of 17 items' scores (total 23 items) with the scores of dimensions they belong to were above 0.5, with the highest 0.759; the other 6 items' correlation coefficients were below 0.5, with the lowest 0.280. For parent proxy-reports, the correlation coefficients of 19 items' scores with the scores of dimension they belong to were above 0.5, with the highest 0.793, the other 4 items' below 0.5 with the lowest 0.243.
The quality of life in children with short stature is worse than their normal peers by Peds QL4.0 generic core scales, the statues of their quality of life was positively related to their stature.
在中国，很少有研究关注身材矮小儿童的生活质量，因此我们探讨了这些儿童的生活质量以及中文版儿童生活质量量表 4.0（PedsQL4.0）通用核心量表在身材矮小儿童中的心理计量学特性。
本研究共纳入首都儿科研究所矮小门诊及其他科室的 201 名 8~18 岁的儿童。调查问卷包括人口统计学信息和 PedsQL4.0 通用核心量表。根据儿童的身高，我们将他们分为三组：矮小组、正常偏矮组和正常组，然后根据身高类别比较量表的评分。此外，我们还分析了 201 名儿童的 PedsQL4.0 通用核心量表的信度和效度。
儿童自我报告的 PedsQL 总分均值，矮小组、正常偏矮组和正常组分别为 77.77±9.69、83.50±8.56 和 87.36±7.23；家长报告的 PedsQL 总分均值分别为 77.62±10.50、82.69±8.35 和 84.91±9.96。儿童自我报告和家长报告的总量表、心理社会健康和社会功能维度的 Cronbach's α 系数在 0.740.80 之间，其他维度在 0.510.66 之间。对于儿童自我报告，17 个项目（共 23 个项目）的得分与所属维度的得分之间的相关系数均大于 0.5，最高为 0.759；其余 6 个项目的相关系数低于 0.5，最低为 0.280。对于家长报告，19 个项目的得分与所属维度的得分之间的相关系数均大于 0.5，最高为 0.793，其余 4 个项目的相关系数低于 0.5，最低为 0.243。
通过 PedsQL4.0 通用核心量表评估，身材矮小儿童的生活质量较正常同龄人差，其生活质量状况与身高呈正相关。
