严重脑损伤中的替代期望。
Surrogate expectations in severe brain injury.
作者信息
Suppes Alexandra, Fins Joseph J
机构信息
Division of Medical Ethics, Weill Medical College of Cornell University, New York, NY, USA.
出版信息
Brain Inj. 2013;27(10):1141-7. doi: 10.3109/02699052.2013.804201. Epub 2013 Jul 29.
OBJECTIVE
To understand what influences surrogate decision-makers' expectation that a patient with a disorder of consciousness (DOC; those in a coma, the vegetative state or the minimally conscious state) will recover.
SUBJECTS
Forty-one surrogates representing 37 DOC patients completed a survey about their experiences in having a family member with a DOC.
METHODS
A quantitative questionnaire assessed surrogate and patient's demographic, medical and psychosocial features that may explain surrogate's expectation of patient recovery.
RESULTS
Surrogates who were more relationally enmeshed with the patient thought the patient could communicate better and thought technology would improve treatment of patients with brain injury had greater expectations of recovery. Source of injury and patient's current diagnosis did not explain expectations.
CONCLUSION
Relational factors between the patient and the surrogate may explain the surrogate's expectation that the patient will recover more than factors that matter to clinicians such as the source of injury or the patient's diagnosis.
目的
了解哪些因素会影响替代决策者对于意识障碍患者（DOC；处于昏迷、植物状态或最低意识状态的患者）康复的期望。
对象
代表37名意识障碍患者的41名替代决策者完成了一项关于其家中有一名意识障碍家庭成员经历的调查。
方法
一份定量问卷评估了替代决策者和患者的人口统计学、医学及社会心理特征，这些特征可能解释替代决策者对患者康复的期望。
结果
与患者关系更为紧密的替代决策者认为患者沟通能力更强，并且认为技术将改善脑损伤患者的治疗，他们对康复的期望更高。损伤来源和患者当前诊断并不能解释期望情况。
结论
患者与替代决策者之间的关系因素可能比诸如损伤来源或患者诊断等对临床医生而言重要的因素更能解释替代决策者对患者康复的期望。
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