青年男性睾丸癌患者的健康相关生活质量：癌症评估用于青年成年人（CAYA）的验证。
Health-related quality of life in young men with testicular cancer: validation of the Cancer Assessment for Young Adults (CAYA).
机构信息
Department of Psychology, Hunter College, City University of New York, 695 Park Avenue, Room 611-HN, New York, NY, 10065, USA,
出版信息
J Cancer Surviv. 2013 Dec;7(4):630-40. doi: 10.1007/s11764-013-0302-x. Epub 2013 Aug 6.
BACKGROUND
Patient-reported outcome instruments are needed to measure health-related quality of life (HRQOL) in young adults with cancer. The purpose of this project was to establish a conceptual model and measurement instrument for assessment of HRQOL in young men with testicular cancer.
METHODS
Patient interviews and a literature review were used to develop a conceptual framework of biopsychosocial domains of cancer-related quality of life and an initial pool of questionnaire items. Items were piloted and refined. Revised items were administered to a sample (N = 171) of young (ages 18-29) men with testicular cancer and repeated 4 weeks later. Rasch measurement methods guided item reduction and scale construction. Traditional psychometric analyses were also performed to allow for comparison with existing measures.
RESULTS
The conceptual framework included seven biopsychosocial domains: physical, sexual, intrapersonal, cognitive-emotional, social-relational, educational-vocational-avocational, and spiritual to form independent scales of the resulting questionnaire, the Cancer Assessment for Young Adults-Testicular (CAYA-T). Each scale fulfilled Rasch and traditional psychometric criteria (i.e., person separation index, 0.34-0.82; Cronbach's alpha, 0.70-0.91; and an expected pattern of convergent and discriminant validity correlations).
CONCLUSIONS
The CAYA-T can be used to assess HRQOL across a comprehensive set of domains as identified by young men with cancer. It passes strict psychometric criteria and has potential as a useful research and clinical tool.
IMPLICATIONS FOR CANCER SURVIVORS
The CAYA-T has potential research and clinical value for addressing inter-related aspects of HRQOL in young adult men with cancer. The measure may assist with assessing and monitoring HRQOL across a range of domains and contributing to more comprehensive assessment of biopsychosocial needs of young adults.
背景
需要患者报告结局工具来测量癌症青年患者的健康相关生活质量（HRQOL）。本项目的目的是建立一个用于评估睾丸癌青年男性 HRQOL 的概念模型和测量工具。
方法
采用患者访谈和文献回顾的方法，制定了癌症相关生活质量的心理社会生物领域的概念框架和初始问卷条目池。对条目进行了试点和精炼。修订后的条目被用于睾丸癌青年（18-29 岁）男性的样本（N=171），并在 4 周后重复。Rasch 测量方法指导了项目的缩减和量表的构建。传统的心理测量分析也被用来与现有的测量方法进行比较。
结果
概念框架包括七个心理社会领域：身体、性、个体内部、认知情感、社会关系、教育-职业-业余和精神，形成了问卷的独立量表，即癌症评估用于年轻人-睾丸（CAYA-T）。每个量表都满足了 Rasch 和传统心理测量标准（即，个体分离指数，0.34-0.82；克朗巴赫的 alpha，0.70-0.91；以及预期的收敛和区别效度相关性模式）。
结论
CAYA-T 可用于评估癌症青年男性全面的 HRQOL 领域。它通过了严格的心理测量标准，具有作为有用的研究和临床工具的潜力。
对癌症幸存者的影响
CAYA-T 对于评估癌症青年男性 HRQOL 的相互关联方面具有潜在的研究和临床价值。该方法可以帮助评估和监测一系列领域的 HRQOL，并有助于更全面地评估年轻人的心理社会需求。
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