Aline C. Gubrium is with the Department of Public Health, School of Public Health and Health Sciences, University of Massachusetts Amherst. Amy L. Hill is with Silence Speaks, Center for Digital Storytelling, Berkeley, CA. Sarah Flicker is with the Department of Environmental Studies, York University, Toronto, Ontario.
Am J Public Health. 2014 Sep;104(9):1606-14. doi: 10.2105/AJPH.2013.301310. Epub 2013 Aug 15.
This article explores ethical considerations related to participatory visual and digital methods for public health research and practice, through the lens of an approach known as "digital storytelling." We begin by briefly describing the digital storytelling process and its applications to public health research and practice. Next, we explore 6 common challenges: fuzzy boundaries, recruitment and consent to participate, power of shaping, representation and harm, confidentiality, and release of materials. We discuss their complexities and offer some considerations for ethical practice. We hope this article serves as a catalyst for expanded dialogue about the need for high standards of integrity and a situated practice of ethics wherein researchers and practitioners reflexively consider ethical decision-making as part of the ongoing work of public health.
本文通过一种被称为“数字故事”的方法,探讨了与参与式视觉和数字方法相关的伦理考虑因素,适用于公共卫生研究和实践。我们首先简要描述了数字故事的过程及其在公共卫生研究和实践中的应用。接下来,我们探讨了 6 个常见挑战:模糊的界限、参与的招募和同意、塑造的力量、代表性和伤害、保密性以及材料的发布。我们讨论了它们的复杂性,并为伦理实践提供了一些考虑因素。我们希望本文能够引发更多关于高标准诚信和情境化伦理实践的对话,使研究人员和实践者能够将伦理决策作为公共卫生持续工作的一部分进行反思。