Angelo Jennifer K, Egan Richard, Reid Kate
Occupational Therapist, Otago Community Hospice, 293 North Road, Dunedin, New Zealand, and School of Physiotherapy, University of Otago.
Int J Palliat Nurs. 2013 Aug;19(8):383-8. doi: 10.12968/ijpn.2013.19.8.383.
Family caregivers are the backbone of the social care delivery system. With cancer and other life-limiting diseases on the rise, the need for well-informed informal/family caregivers has never been greater.
To uncover the information that palliative care teams routinely provide to family caregivers.
The methodology used was the nominal group technique, a type of focus group.
A total of 17 community palliative care health professionals participated in one of three focus groups.
Three themes emerged as dominant priorities for the education of family caregivers: caring for oneself physically, emotionally, and spiritually; learning practical skills; and knowing what to expect and plan for as the family member's health declines.
The participants encourage caregivers to meet their own needs as well as care for family members. They help to empower family caregivers by encouraging them to take time for themselves, providing practical information for individual situations, and educating them on the signs and symptoms of approaching death. Successful terminal home care is possible through family caregiver support and empowerment.
家庭照顾者是社会护理服务体系的支柱。随着癌症和其他危及生命的疾病日益增多，对知识渊博的非正式/家庭照顾者的需求前所未有的大。
揭示姑息治疗团队定期向家庭照顾者提供的信息。
所采用的方法是名义小组技术，这是焦点小组的一种类型。
共有17名社区姑息治疗健康专业人员参加了三个焦点小组中的一个。
出现了三个成为家庭照顾者教育主要优先事项的主题：在身体、情感和精神上照顾好自己；学习实用技能；以及了解随着家庭成员健康状况下降会发生什么并做好规划。
参与者鼓励照顾者满足自身需求以及照顾家庭成员。他们通过鼓励照顾者为自己留出时间、针对具体情况提供实用信息以及就临近死亡的体征和症状对他们进行教育，来帮助增强家庭照顾者的能力。通过家庭照顾者的支持和赋权，成功的临终居家护理是可行的。
