Gräske Johannes, Verbeek Hilde, Gellert Paul, Fischer Thomas, Kuhlmey Adelheid, Wolf-Ostermann Karin
Institute of Medical Sociology, Charité-Universitätsmedizin Berlin, Luisenstr. 57, 10117, Berlin, Germany,
Qual Life Res. 2014 Mar;23(2):549-59. doi: 10.1007/s11136-013-0504-8. Epub 2013 Aug 22.
The appropriateness of existing quality of life (QoL) instruments in small-scale, homelike care facilities for people with dementia is as yet unknown. This study evaluated the psychometric properties of three QoL instruments in German shared-housing arrangements (SHA).
A cross-sectional study was conducted in 36 SHA in Berlin to evaluate the acceptability, internal consistency, and validity (construct, convergent, and discriminant) of three QoL instruments: Alzheimer's Disease Related Quality of Life (ADRQL), Quality of Life-Alzheimer's Diseases (QoL-AD), and measuring QUAlity of LIfe in DEMentia (QUALIDEM).
A total of 104 residents (mean age 79.0 years, 73 % female) were included. All instruments showed good acceptability, with QUALIDEM the best. Adequate levels of internal consistency for the ADRQL and QoL-AD and most of the QUALIDEM domains were found. Validity of all the instruments measuring QoL was confirmed.
Study findings suggest that QUALIDEM is the preferred instrument to evaluate QoL of residents in SHA, especially due to the high acceptability. Further research is needed to develop and improve these existing measurements.
目前尚不清楚现有的生活质量（QoL）评估工具对于小规模、类似家庭环境的痴呆症患者护理机构是否适用。本研究评估了三种生活质量评估工具在德国共享住房安排（SHA）中的心理测量特性。
在柏林的36个共享住房安排机构中进行了一项横断面研究，以评估三种生活质量评估工具的可接受性、内部一致性和有效性（结构效度、收敛效度和区分效度），这三种工具分别是：阿尔茨海默病相关生活质量量表（ADRQL）、阿尔茨海默病生活质量量表（QoL-AD）和痴呆症生活质量测量量表（QUALIDEM）。
共纳入104名居民（平均年龄79.0岁，73%为女性）。所有工具都显示出良好的可接受性，其中QUALIDEM最佳。ADRQL和QoL-AD以及QUALIDEM的大多数领域都具有足够的内部一致性水平。所有测量生活质量的工具的效度均得到证实。
研究结果表明，QUALIDEM是评估共享住房安排机构中居民生活质量的首选工具，尤其是因其具有较高的可接受性。需要进一步开展研究以开发和改进这些现有的测量方法。
