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为痴呆症患者提供支持的家庭照顾者的经历与担忧:跨文化视角

Experiences and concerns of family caregivers providing support to people with dementia: a cross-cultural perspective.

作者信息

Ivey Susan L, Laditka Sarah B, Price Anna E, Tseng Winston, Beard Renée L, Liu Rui, Fetterman David, Wu Bei, Logsdon Rebecca G

机构信息

University of California, Berkeley, USA.

出版信息

Dementia (London). 2013 Nov;12(6):806-20. doi: 10.1177/1471301212446872. Epub 2012 Jul 11.

Abstract

We examined experiences and concerns among caregivers of community-dwelling people with dementia from two ethnic groups. We conducted a thematic analysis of responses to the question, 'What is your life like as a caregiver?' in nine focus groups (n = 75) with Filipino and non-Hispanic White caregivers. Constant comparison methods identified themes by ethnicity. Experiences and concerns expressed across groups were related to care recipient symptoms commonly associated with dementia, including severe memory loss and behavioral changes. Participants in both ethnic groups described strategies that help them cope, such as receiving help from family and friends, receiving respite support, and participating in support groups. Filipino caregivers more often emphasized positive aspects of caregiving, whereas Whites often expressed that others do not understand the daily experiences of caregiving. Filipinos more commonly described caregivers as a 'good person' or 'saint' and emphasized that caregiving made them stronger.

摘要

我们调查了来自两个种族群体的社区痴呆症患者照料者的经历和担忧。我们对九个焦点小组(n = 75)中菲律宾裔和非西班牙裔白人照料者对“作为照料者,你的生活是怎样的?”这一问题的回答进行了主题分析。持续比较法按种族确定了主题。各小组表达的经历和担忧与痴呆症常见的受照料者症状有关,包括严重失忆和行为变化。两个种族群体的参与者都描述了帮助他们应对的策略,比如从家人和朋友那里获得帮助、获得临时照料支持以及参加支持小组。菲律宾裔照料者更常强调照料的积极方面,而白人则常表示其他人不理解照料的日常经历。菲律宾人更常将照料者描述为“好人”或“圣人”,并强调照料使他们更坚强。

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