a University of Michigan School of Social Work , Ann Arbor , MI , USA.
J Psychosoc Oncol. 2014;32(1):1-15. doi: 10.1080/07347332.2013.855959.
As part of the National Cancer Institute's AYA HOPE study, 296 adolescent and young adults (AYAs) completed an open-ended survey item asking them to describe their medical care or experience with cancer. Patient, provider, and system-level characteristics all appear to influence AYAs' perceptions of their medical care. Participants attributed levels of satisfaction with care to the availability and communication of information, the management of side-effects, and the expediency and flexibility of treatments. Struggles with health insurance and finances were evident. Findings contribute to a better understanding of AYAs' cancer treatment experiences and will inform improvements to oncology care for this population.
作为美国国家癌症研究所 AYA HOPE 研究的一部分，296 名青少年和年轻成年人（AYAs）完成了一项开放式调查项目，要求他们描述自己的医疗护理或癌症治疗经历。患者、提供者和系统层面的特征似乎都影响着 AYAs 对其医疗护理的看法。参与者将护理满意度归因于信息的可及性和沟通、副作用的管理，以及治疗的及时性和灵活性。在健康保险和财务方面的困难显而易见。这些发现有助于更好地了解 AYAs 的癌症治疗体验，并为改善该人群的肿瘤护理提供信息。
