Meiland F J M, Hattink B J J, Overmars-Marx T, de Boer M E, Jedlitschka A, Ebben P W G, Stalpers-Croeze Ir I N W, Flick S, van der Leeuw J, Karkowski I P, Dröes R M
Department of Psychiatry/General Practice and Elderly Care Medicine, VU University Medical Center, Amsterdam, the Netherlands.
Department of Psychiatry, VU University Medical Center, Amsterdam, the Netherlands.
Int Psychogeriatr. 2014 May;26(5):769-79. doi: 10.1017/S1041610214000088. Epub 2014 Feb 10.
In the European Rosetta project three separate, previously developed, ICT systems were improved and integrated to create one modular system that helps community-dwelling people with mild cognitive impairment and dementia in different stages of the disease. The system aims to support them in daily functioning, monitor (deviations from) patterns in daily behaviour and to automatically detect emergency situations. The study aimed to inventory the end users' needs and wishes regarding the development and design of the new integrated Rosetta system, and to describe the to be developed Rosetta system.
Qualitative user-participatory design with in total 50 persons: 14 people with dementia, 13 informal carers, 6 professional carers, 9 dementia experts, 7 care partners within the project, and 1 volunteer. In the Netherlands user focus group sessions were performed and in Germany individual interviews. Dementia experts were consulted by means of a questionnaire, an expert meeting session, and interviews.
Persons with dementia and informal carers appreciated the following functionalities most: help in cases of emergencies, navigation support and the calendar function. Dementia experts rated various behaviours relevant to monitor in order to detect timely changes in functioning, e.g. eating, drinking, going to the toilet, taking medicine adequately, performance of activities and sleep patterns. No ethical issues regarding the use of sensors and cameras were mentioned.
The user participatory design resulted in valuable input from persons with dementia, informal carers and professional carers/dementia experts, based on which a first prototype Rosetta system was built.
在欧洲罗塞塔项目中，对三个先前开发的独立信息通信技术系统进行了改进和整合，以创建一个模块化系统，帮助处于疾病不同阶段的社区轻度认知障碍和痴呆症患者。该系统旨在支持他们的日常功能，监测日常行为模式（及其偏差）并自动检测紧急情况。本研究旨在梳理终端用户对新的集成罗塞塔系统开发和设计的需求与期望，并描述即将开发的罗塞塔系统。
采用定性用户参与式设计，共有50人参与：14名痴呆症患者、13名非正式护理人员、6名专业护理人员、9名痴呆症专家、项目中的7名护理伙伴以及1名志愿者。在荷兰进行了用户焦点小组会议，在德国进行了个人访谈。通过问卷调查、专家会议和访谈咨询了痴呆症专家。
痴呆症患者和非正式护理人员最看重以下功能：紧急情况求助、导航支持和日历功能。痴呆症专家对各种与监测相关的行为进行了评分，以便及时发现功能变化，例如饮食、饮水、上厕所、正确服药、活动表现和睡眠模式。未提及使用传感器和摄像头的伦理问题。
用户参与式设计得到了痴呆症患者、非正式护理人员以及专业护理人员/痴呆症专家的宝贵意见，在此基础上构建了罗塞塔系统的首个原型。
