Huh Jina, Patel Rupa, Pratt Wanda
Proc SIGCHI Conf Hum Factor Comput Syst. 2012;2012:923-926. doi: 10.1145/2207676.2208535.
Online health communities that engage the patient as a attend to personal and medical needs in a holistic manner. Whether current communities structure interaction between health professionals and patients to address the whole person is an open question. To gain insights into this question, we examined a sample of online patient communities to understand health professionals' involvement in bringing in medical advice into peer-patient conversations. We found the communities fall short in supporting the whole person, because (1) patient expertise and clinical expertise generated by health professionals are shared separately, and (2) patients' quantified data are separate from narrative experiences. Such separation in the design of these systems can lead to limitations in addressing patients' interwoven medical and personal concerns. We discuss dilemmas and design implications for supporting the whole person in online patient communities.
让患者参与其中的在线健康社区会以整体方式关注个人和医疗需求。当前的社区是否构建了健康专业人员与患者之间的互动以关注整个人，这是一个悬而未决的问题。为了深入了解这个问题，我们研究了在线患者社区的一个样本，以了解健康专业人员在将医疗建议引入患者间对话方面的参与情况。我们发现这些社区在支持整个人方面存在不足，原因如下：（1）患者的专业知识和健康专业人员产生的临床专业知识是分开共享的；（2）患者的量化数据与叙述性经历是分开的。这些系统设计中的这种分离可能会导致在解决患者相互交织的医疗和个人问题时受到限制。我们讨论了在在线患者社区中支持整个人的困境和设计启示。
