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利用在线社区为痴呆症患者的照顾者提供支持。

Use of an online community to provide support to caregivers of people with dementia.

作者信息

Pagán-Ortiz Marta E, Cortés Dharma E, Rudloff Noelle, Weitzman Patricia, Levkoff Sue

机构信息

a Environment & Health Group, Inc. , Cambridge , Massachusetts , USA.

出版信息

J Gerontol Soc Work. 2014;57(6-7):694-709. doi: 10.1080/01634372.2014.901998. Epub 2014 Jul 29.

Abstract

One challenge faced by many family members caring for persons with dementia is lack of information about how to take care of others and themselves. This is especially important for persons from ethnic minority groups, because linguistically and culturally appropriate information is often not available. In response to these needs, we developed a web site for Spanish-speaking caregivers. Cuidatecuidador.com provides bilingual information on dementia and caregiver issues. Content was developed and then evaluated by caregivers residing in 3 countries. Findings suggest trends that exposure to information may be related to a higher sense of mastery and a reduction of depressive symptomatology.

摘要

许多照顾痴呆症患者的家庭成员面临的一个挑战是缺乏有关如何照顾他人和照顾自己的信息。这对少数族裔群体的人来说尤为重要,因为通常没有语言和文化上合适的信息。为满足这些需求,我们为讲西班牙语的照顾者开发了一个网站。Cuidatecuidador.com提供有关痴呆症和照顾者问题的双语信息。内容由居住在3个国家的照顾者制定并评估。研究结果表明,接触信息可能与更高的掌控感和抑郁症状的减轻有关。

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