Douglas Sara L, Daly Barbara J
School of Nursing, Case Western Reserve University, Cleveland, OH.
Oncol Nurs Forum. 2014 Jul 1;41(4):E248-55. doi: 10.1188/14.ONF.E248-E255.
PURPOSE/OBJECTIVES: To test the effectiveness of an interdisciplinary cancer support team (CST) on caregiver satisfaction with end-of-life (EOL) care for family members with advanced cancer.
Quasi-experimental pre- and post-test tandem design.
Outpatient clinics of a comprehensive cancer center in urban Cleveland, OH.
106 family caregivers.
Participants were enrolled into the control or CST group. Caregiver mood state and social support were measured at enrollment as well as at 3, 9, and 15 months, and satisfaction with EOL care was measured eight weeks after the patient's death.
Caregiver mood state, social support, and satisfaction with EOL care.
The intervention made no statistically significant contribution to caregiver mood state or perception of social support. The intervention group reported higher satisfaction with overall EOL care as well as five specific areas of EOL satisfaction (i.e., pain relief, information about managing pain, speed in treating symptoms, information regarding side effects, and coordination of care).
The CST yielded improved EOL satisfaction.
Although the emotional impact of an impending loss of a loved one may not change with the provision of support, perception that a loved one was well cared for in the terminal phase of illness may have long-range benefits through the grieving process. Investigation of the long-range effects of satisfaction with EOL care on the grieving process is warranted.
目的/目标:测试跨学科癌症支持团队(CST)对晚期癌症患者家庭成员的临终(EOL)护理中照顾者满意度的有效性。
准实验性前后测试串联设计。
俄亥俄州克利夫兰市一家综合癌症中心的门诊诊所。
106名家庭照顾者。
参与者被纳入对照组或CST组。在入组时以及3个月、9个月和15个月时测量照顾者的情绪状态和社会支持,并在患者死亡八周后测量对临终护理的满意度。
照顾者的情绪状态、社会支持以及对临终护理的满意度。
该干预措施对照顾者的情绪状态或社会支持感知没有统计学上的显著影响。干预组报告对总体临终护理以及临终护理满意度的五个具体方面(即疼痛缓解、疼痛管理信息、症状治疗速度、副作用信息以及护理协调)有更高的满意度。
CST提高了临终护理满意度。
尽管即将失去亲人所带来的情感影响可能不会因提供支持而改变,但认为亲人在疾病末期得到了良好护理的认知可能会在悲伤过程中带来长期益处。有必要对临终护理满意度对悲伤过程的长期影响进行调查。