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脊髓损伤患者生活质量量表:综合综述。

Scales on Quality of Life in patients with spinal cord injury: integrative review.

作者信息

Aquarone Rita Lacerda, Faro Ana Cristina Mancussi e

机构信息

Hospital Israelita Albert Einstein, São Paulo, SP, Brazil.

Universidade de São Paulo, São Paulo, SP, Brazil.

出版信息

Einstein (Sao Paulo). 2014 Apr;12(2):245-50. doi: 10.1590/s1679-45082014rw2591.

Abstract

Studies evaluating the Quality of Life of individuals with spinal cord injury using different research tools demonstrate that the Quality of Life scores are considered low both in national and international studies. The objective of this review was to characterize the international scientific production about the most used scales to assess Quality of Life in patients with spinal cord injury. We examined articles on Quality of Life of patients with spinal cord injury published over the last 5 years and indexed in the National Library of Medicine (PUBMED). During this period, 28 articles met the inclusion criteria. Eleven studies were conducted in the United States, five articles were published in Australia, and four in Canada. Brazil, France, Holland, India, Japan, Norway, Singapore and Switzerland contributed with one study each. The scientific articles were published in 13 high impact factor journals. Seven different instruments to assess Quality of Life were used in the studies: Satisfaction with Life Scale, Short Form (36) Health Survey, The Brief Version of the WHO Quality of Life Questionnaire (WHOQOL-BREF), Comprehensive Quality of Life Scale, Life Situation Questionnaire-Revised, Quality of Well-Being Scale and the SF-12® Health Survey. The articles examined underscore the impact of spinal cord injury in the Quality of Life of patients, demonstrating how this condition impairs their lives, mainly socially, but followed by the physical aspects. Despite the studies have different goals they all acknowledge that further studies are necessary in order to determine the Quality of Life of patients with spinal cord injury. Specific instruments should be chosen or developed and validated in order to fulfill this purpose.

摘要

使用不同研究工具评估脊髓损伤患者生活质量的研究表明,在国内和国际研究中,生活质量得分均被认为较低。本综述的目的是描述关于评估脊髓损伤患者生活质量最常用量表的国际科研成果。我们查阅了过去5年发表并被美国国立医学图书馆(PUBMED)收录的关于脊髓损伤患者生活质量的文章。在此期间,有28篇文章符合纳入标准。11项研究在美国进行,5篇文章在澳大利亚发表,4篇在加拿大发表。巴西、法国、荷兰、印度、日本、挪威、新加坡和瑞士各有一项研究。这些科学文章发表在13种高影响因子期刊上。研究中使用了7种不同的生活质量评估工具:生活满意度量表、简短健康调查问卷(36项)、世界卫生组织生活质量问卷简版(WHOQOL - BREF)、综合生活质量量表、修订后的生活状况问卷、幸福感量表和SF - 12®健康调查。所查阅的文章强调了脊髓损伤对患者生活质量的影响,表明这种状况如何损害他们的生活,主要是在社交方面,但其次是身体方面。尽管这些研究目标不同,但它们都承认有必要进行进一步研究以确定脊髓损伤患者的生活质量。为实现这一目的,应选择或开发并验证特定的工具。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/acb6/4891172/15b6629dc4ad/1679-4508-eins-12-02-0245-gf01.jpg

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