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Enhancing patient-professional communication about end-of-life issues in life-limiting conditions: a critical review of the literature.在生命末期限制条件下增强医患关于临终问题的沟通:文献综述
J Pain Symptom Manage. 2012 Dec;44(6):866-79. doi: 10.1016/j.jpainsymman.2011.11.009. Epub 2012 Jul 21.
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Ethics: end-of-life decision-making in a pediatric patient with SMA type 2: the influence of the media.伦理:2 型 SMA 儿科患者的临终决策:媒体的影响。
Neurology. 2012 Jun 5;78(23):e143-5. doi: 10.1212/WNL.0b013e318258f835.
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Nursing care of the family before and after a death in the ICU--an exploratory pilot study.重症监护病房患者死亡前后的家庭护理——探索性试点研究。
Aust Crit Care. 2013 Feb;26(1):23-8. doi: 10.1016/j.aucc.2012.01.001. Epub 2012 Feb 5.
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Palliative care in the ICU.重症监护病房中的姑息治疗。
J Palliat Med. 2012 Feb;15(2):168-74. doi: 10.1089/jpm.2011.9599. Epub 2012 Jan 26.
5
Using the improving palliative care in the intensive care unit (IPAL-ICU) project to promote palliative care consultation.利用加强重症监护病房(IPAL-ICU)中的舒缓治疗项目来推广舒缓治疗咨询。
J Pain Symptom Manage. 2011 Nov;42(5):672-5. doi: 10.1016/j.jpainsymman.2011.08.002.
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The intern experience: facing death.实习医生的经历:直面死亡
J Palliat Med. 2011 Jun;14(6):784-5. doi: 10.1089/jpm.2010.0512.
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Approaching patients and family members who hope for a miracle.面对那些期待奇迹的患者和家属。
J Pain Symptom Manage. 2011 Jul;42(1):119-25. doi: 10.1016/j.jpainsymman.2011.03.008. Epub 2011 Jun 8.
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Critically ill patients and end-of-life decision-making: the senior medical resident experience.危重症患者和临终决策:老年住院医师的体验。
Adv Health Sci Educ Theory Pract. 2012 Mar;17(1):121-36. doi: 10.1007/s10459-011-9306-3. Epub 2011 May 28.
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End-of-life care in acute hospitals.急症医院的临终关怀
Aust Health Rev. 2011 May;35(2):176-7. doi: 10.1071/AH10963.
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在澳大利亚的重症和急症环境中,是否可能有一个善终?:医生对临终关怀的体验。

Is a good death possible in Australian critical and acute settings?: physician experiences with end-of-life care.

机构信息

Centre for Health Research, School of Medicine, University of Western Sydney, Campbelltown, Australia.

出版信息

BMC Palliat Care. 2014 Aug 18;13:41. doi: 10.1186/1472-684X-13-41. eCollection 2014.

DOI:10.1186/1472-684X-13-41
PMID:25147481
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC4140139/
Abstract

BACKGROUND

In Australia approximately 70% of all deaths are institutionalised but over 15% of deaths occur in intensive care settings where the ability to provide a "good death" is particularly inhibited. Yet, there is a growing trend for death and dying to be managed in the ICU and physicians are increasingly challenged to meet the new expectations of their specialty. This study examined the unexplored interface between specialised Australian palliative and intensive care and the factors influencing a physician's ability to manage deaths well.

METHOD

A qualitative investigation was focused on palliative and critical/acute settings. A thematic analysis was conducted on semi-structured in-depth interviews with 13 specialist physicians. Attention was given to eliciting meanings and experiences in Australian end-of-life care.

RESULTS

Physicians negotiated multiple influences when managing dying patients and their families in the ICU. The way they understood and experienced end-of-life care practices was affected by cultural, institutional and professional considerations, and personal values and beliefs. Interpersonal and intrapsychic aspects highlighted the emotional and psychological relationship physicians have with patients and others. Many physicians were also unaware of what their cross-disciplinary colleagues could or could not do; poor professional recognition and collaboration, and ineffective care goal transition impaired their ability to assist good deaths. Experience was subject to the efficacy of physicians in negotiating complex bedside dynamics.

CONCLUSIONS

Regardless of specialty, all physicians identified the problematic nature of providing expert palliation in critical and acute settings. Strategies for integrating specialised palliative and intensive care were offered with corresponding directions for future research and clinical development.

摘要

背景

在澳大利亚,约 70%的死亡是在医疗机构发生的,但有超过 15%的死亡发生在重症监护病房,在那里提供“善终”的能力受到特别限制。然而,在 ICU 管理死亡和濒死的趋势日益增长,医生越来越需要满足他们专业的新期望。本研究考察了澳大利亚专门的姑息治疗和重症监护之间尚未探索的界面,以及影响医生管理死亡能力的因素。

方法

一项定性研究集中在姑息治疗和重症/急症环境上。对 13 名专科医生进行了半结构式深入访谈,并对其进行了主题分析。重点是在澳大利亚临终关怀中引出意义和经验。

结果

医生在 ICU 管理临终患者及其家属时,会权衡多种因素。他们对临终关怀实践的理解和体验受到文化、机构和专业考虑因素以及个人价值观和信仰的影响。人际和内在方面突出了医生与患者和他人之间的情感和心理关系。许多医生也不知道他们的跨学科同事能做什么或不能做什么;专业认可和协作不佳,以及无效的护理目标过渡,削弱了他们协助善终的能力。经验取决于医生在协商复杂床边动态方面的效力。

结论

无论专业如何,所有医生都认为在重症和急症环境中提供专业姑息治疗具有问题性。提出了整合专门的姑息治疗和重症监护的策略,并为未来的研究和临床发展提供了相应的方向。