Hawley Nancy C, Wieland Mark L, Weis Jennifer A, Sia Irene G
Prog Community Health Partnersh. 2014 Summer;8(2):241-8. doi: 10.1353/cpr.2014.0023.
Human subjects protection training (HSPT) is a requirement of institutional review boards (IRBs) for individuals who engage in research. The lack of HSPT among community partners may contribute to power imbalance between community and academic members of community-based participatory research (CBPR) partnerships. The Rochester Healthy Community Partnership (RHCP) is an established CBPR partnership in Minnesota that works primarily with immigrant and refugee populations.
We sought to describe the implementation and evaluation of HSPT among community members of a CBPR partnership.
Seven community partners participated in HSPT through adaptation of an existing institutional program. Evaluation of program acceptability was measured through a 5-item survey (5-point Likert scales). A focus group with all seven participants was conducted to evaluate the impact of training on perceptions of research, characteristics of a successful program, and potential value of training to CBPR partnerships. Coding and inductive analysis were done on the transcript with NVIVO-9 software.
The HSPT program was highly acceptable (mean score, 4.5 ± 0.2). Focus groups revealed that training implementation should be done as a cohesive group with the opportunity to discuss concepts as they pertain to partnership projects. Training fostered an encouraging and safe environment, accommodated diverse learning styles, and promoted interaction. Participants reported improved trust in research as a result of the training. Perceived impact of the training on the CBPR partnership included improved transparency and enhanced camaraderie while establishing essential knowledge required for community leaders.
HSPT is feasible among community members of a CBPR partnership, and may improve perceptions of research while strengthening capacity of partnerships to impact community health.
人体受试者保护培训（HSPT）是机构审查委员会（IRB）对参与研究的人员的一项要求。社区合作伙伴中缺乏HSPT可能会导致社区参与性研究（CBPR）伙伴关系中社区成员与学术成员之间的权力不平衡。罗切斯特健康社区伙伴关系（RHCP）是明尼苏达州一个既定的CBPR伙伴关系，主要与移民和难民群体合作。
我们试图描述CBPR伙伴关系中社区成员的HSPT实施情况及评估。
七名社区合作伙伴通过改编现有的机构项目参与了HSPT。通过一项包含5个项目的调查（5级李克特量表）来衡量项目可接受性。与所有七名参与者进行了焦点小组讨论，以评估培训对研究认知、成功项目的特征以及培训对CBPR伙伴关系的潜在价值的影响。使用NVIVO - 9软件对转录本进行编码和归纳分析。
HSPT项目非常可接受（平均得分4.5±0.2）。焦点小组表明，培训实施应作为一个有凝聚力的群体进行，并有机会讨论与伙伴关系项目相关的概念。培训营造了一个鼓舞人心且安全的环境，适应了不同的学习风格，并促进了互动。参与者报告称，培训后对研究的信任有所提高。培训对CBPR伙伴关系的感知影响包括提高透明度、增强同志情谊，同时建立社区领导者所需的基本知识。
HSPT在CBPR伙伴关系的社区成员中是可行的，可能会改善对研究的认知，同时增强伙伴关系影响社区健康的能力。
