Byler Debra L, Chan Lisa, Lehman Erik, Brown Ashley D, Ahmad Syeda, Berlin Cheston
Penn State College of Medicine, Hershey, PA, USA
Penn State College of Medicine, Hershey, PA, USA.
Clin Pediatr (Phila). 2015 Feb;54(2):138-44. doi: 10.1177/0009922814550396. Epub 2014 Sep 7.
A retrospective analysis of a 35-year single-center experience with pediatric tics and Tourette syndrome was conducted. 482 charts from 1972 to 2007 were reviewed. Follow-up surveys were mailed to last known address and 83 patients responded (17%). Response rate was affected by long interval from last visit; contact information was often incorrect as it was the address of the patient as a child. Males constituted 84%. Mean tic onset was 6.6 years. At first visit, 83% had multiple motor tics and >50% had comorbidities. 44% required only 1 visit and 90% less than 12 visits. Follow-up showed positive clinical and social outcomes in 73/83 survey responses. Of those indicating a poor outcome, mean educational level was lower and attention deficit/hyperactivity disorder and learning disabilities were significantly higher. Access to knowledgeable caregivers was a problem for adult patients. A shortage of specialists may in part be addressed by interested general pediatricians.
对一家单中心35年以来小儿抽动症和图雷特综合征的病例进行了回顾性分析。研究人员查阅了1972年至2007年期间的482份病历。随访调查问卷被邮寄至患者最后已知的地址，83名患者回复（回复率为17%）。回复率受上次就诊后时间间隔较长的影响；联系信息常常有误，因为那是患者儿时的地址。男性占84%。抽动症状的平均起病年龄为6.6岁。初诊时，83%的患者有多种运动性抽动症状，超过50%的患者有共病。44%的患者仅需就诊1次，90%的患者就诊次数少于12次。随访显示，在83份回复的调查问卷中，73份呈现出积极的临床和社会结果。在那些表示结果不佳的患者中，平均受教育程度较低，注意力缺陷多动障碍和学习障碍的发生率显著更高。成年患者难以获得知识渊博的护理人员。感兴趣的普通儿科医生在一定程度上可以解决专科医生短缺的问题。
