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表述清晰,易于理解?提供癫痫信息的网站的可读性。

Clearly written, easily comprehended? The readability of websites providing information on epilepsy.

作者信息

Brigo Francesco, Otte Willem M, Igwe Stanley C, Tezzon Frediano, Nardone Raffaele

机构信息

Department of Neurological and Movement Sciences, Section of Clinical Neurology, University of Verona, Italy; Department of Neurology, Franz Tappeiner Hospital, Merano, Italy.

Department of Pediatric Neurology, Brain Center Rudolf Magnus, University Medical Center Utrecht, The Netherlands; Biomedical MR Imaging and Spectroscopy Group, Image Sciences Institute, University Medical Center Utrecht, The Netherlands.

出版信息

Epilepsy Behav. 2015 Mar;44:35-9. doi: 10.1016/j.yebeh.2014.12.029. Epub 2015 Jan 16.

Abstract

There is a general need for high-quality, easily accessible, and comprehensive health-care information on epilepsy to better inform the general population about this highly stigmatized neurological disorder. The aim of this study was to evaluate the health literacy level of eight popular English-written websites that provide information on epilepsy in quantitative terms of readability. Educational epilepsy material on these websites, including 41 Wikipedia articles, were analyzed for their overall level of readability and the corresponding academic grade level needed to comprehend the published texts on the first reading. The Flesch Reading Ease (FRE) was used to assess ease of comprehension while the Gunning Fog Index, Coleman-Liau Index, Flesch-Kincaid Grade Level, Automated Readability Index, and Simple Measure of Gobbledygook scales estimated the corresponding academic grade level needed for comprehension. The average readability of websites yielded results indicative of a difficult-to-fairly-difficult readability level (FRE results: 44.0±8.2), with text readability corresponding to an 11th academic grade level (11.3±1.9). The average FRE score of the Wikipedia articles was indicative of a difficult readability level (25.6±9.5), with the other readability scales yielding results corresponding to a 14th grade level (14.3±1.7). Popular websites providing information on epilepsy, including Wikipedia, often demonstrate a low level of readability. This can be ameliorated by increasing access to clear and concise online information on epilepsy and health in general. Short "basic" summaries targeted to patients and nonmedical users should be added to articles published in specialist websites and Wikipedia to ease readability.

摘要

普遍需要高质量、易于获取且全面的癫痫医疗保健信息,以便让普通民众更好地了解这种备受污名化的神经系统疾病。本研究的目的是从可读性的定量角度评估八个提供癫痫信息的英文热门网站的健康素养水平。分析了这些网站上的癫痫教育资料,包括41篇维基百科文章,以确定其整体可读性水平以及首次阅读时理解所发表文本所需的相应学术年级水平。使用弗莱什易读性指数(FRE)评估理解的难易程度,而冈宁雾度指数、科尔曼-廖指数、弗莱什-金凯德年级水平指数、自动可读性指数和简单费解度量表则估算了理解所需的相应学术年级水平。网站的平均可读性结果表明其可读性水平处于困难到相当困难之间(FRE结果:44.0±8.2),文本可读性对应于11年级水平(11.3±1.9)。维基百科文章的平均FRE得分表明其可读性水平困难(25.6±9.5),其他可读性量表得出的结果对应于14年级水平(14.3±1.7)。包括维基百科在内的提供癫痫信息的热门网站,其可读性往往较低。通过增加获取关于癫痫和一般健康的清晰简洁的在线信息,可以改善这种情况。应在专业网站和维基百科上发表的文章中添加针对患者和非医学用户的简短“基础”摘要,以提高可读性。

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