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精神分裂症成年患者照料者的生活质量与社会隔离:政策与结果

Quality of Life and Social Isolation Among Caregivers of Adults with Schizophrenia: Policy and Outcomes.

作者信息

Hayes Laura, Hawthorne Graeme, Farhall John, O'Hanlon Brendan, Harvey Carol

机构信息

Department of Psychiatry, Psychosocial Research Centre, University of Melbourne, 130 Bell St., Coburg, VIC, 3058, Australia,

出版信息

Community Ment Health J. 2015 Jul;51(5):591-7. doi: 10.1007/s10597-015-9848-6. Epub 2015 Feb 18.

Abstract

Services have been increasingly directed at supporting carers of people living with mental illness but it is difficult to evaluate the impact of service change where benchmarks for carer functioning are sparse. Sixty Australian carers were assessed regarding their quality of life, psychological distress, social isolation and caregiving experience. Their scores were compared with two matched community samples and previous studies. Carers were ten times more likely to be socially isolated and quality of life was significantly less than matched community samples. Over 40 % of the carer sample met criteria for probable psychiatric disorder. Comparison of caregiving experiences with a study 15 years ago showed no improvement in negative caregiving experiences. Carers still face considerable challenges to their wellbeing as they support people living with mental illness, in spite of progress in the development of policy and services.

摘要

服务越来越多地致力于支持患有精神疾病者的照料者,但在照料者功能基准稀少的情况下,很难评估服务变化的影响。对60名澳大利亚照料者的生活质量、心理困扰、社会隔离和照料经历进行了评估。将他们的得分与两个匹配的社区样本以及先前的研究进行了比较。照料者出现社会隔离的可能性是常人的十倍,其生活质量明显低于匹配的社区样本。超过40%的照料者样本符合可能患有精神障碍的标准。将照料经历与15年前的一项研究进行比较,结果显示负面照料经历没有改善。尽管在政策和服务发展方面取得了进展,但照料者在支持患有精神疾病的人时,其自身的幸福仍面临相当大的挑战。

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