• 文献检索
  • 文档翻译
  • 深度研究
  • 学术资讯
  • Suppr Zotero 插件Zotero 插件
  • 邀请有礼
  • 套餐&价格
  • 历史记录
应用&插件
Suppr Zotero 插件Zotero 插件浏览器插件Mac 客户端Windows 客户端微信小程序
定价
高级版会员购买积分包购买API积分包
服务
文献检索文档翻译深度研究API 文档MCP 服务
关于我们
关于 Suppr公司介绍联系我们用户协议隐私条款
关注我们

Suppr 超能文献

核心技术专利:CN118964589B侵权必究
粤ICP备2023148730 号-1Suppr @ 2026

文献检索

告别复杂PubMed语法,用中文像聊天一样搜索,搜遍4000万医学文献。AI智能推荐,让科研检索更轻松。

立即免费搜索

文件翻译

保留排版,准确专业,支持PDF/Word/PPT等文件格式,支持 12+语言互译。

免费翻译文档

深度研究

AI帮你快速写综述,25分钟生成高质量综述,智能提取关键信息,辅助科研写作。

立即免费体验

精神分裂症成年患者照料者的生活质量与社会隔离:政策与结果

Quality of Life and Social Isolation Among Caregivers of Adults with Schizophrenia: Policy and Outcomes.

作者信息

Hayes Laura, Hawthorne Graeme, Farhall John, O'Hanlon Brendan, Harvey Carol

机构信息

Department of Psychiatry, Psychosocial Research Centre, University of Melbourne, 130 Bell St., Coburg, VIC, 3058, Australia,

出版信息

Community Ment Health J. 2015 Jul;51(5):591-7. doi: 10.1007/s10597-015-9848-6. Epub 2015 Feb 18.

DOI:10.1007/s10597-015-9848-6
PMID:25690154
Abstract

Services have been increasingly directed at supporting carers of people living with mental illness but it is difficult to evaluate the impact of service change where benchmarks for carer functioning are sparse. Sixty Australian carers were assessed regarding their quality of life, psychological distress, social isolation and caregiving experience. Their scores were compared with two matched community samples and previous studies. Carers were ten times more likely to be socially isolated and quality of life was significantly less than matched community samples. Over 40 % of the carer sample met criteria for probable psychiatric disorder. Comparison of caregiving experiences with a study 15 years ago showed no improvement in negative caregiving experiences. Carers still face considerable challenges to their wellbeing as they support people living with mental illness, in spite of progress in the development of policy and services.

摘要

服务越来越多地致力于支持患有精神疾病者的照料者,但在照料者功能基准稀少的情况下,很难评估服务变化的影响。对60名澳大利亚照料者的生活质量、心理困扰、社会隔离和照料经历进行了评估。将他们的得分与两个匹配的社区样本以及先前的研究进行了比较。照料者出现社会隔离的可能性是常人的十倍,其生活质量明显低于匹配的社区样本。超过40%的照料者样本符合可能患有精神障碍的标准。将照料经历与15年前的一项研究进行比较,结果显示负面照料经历没有改善。尽管在政策和服务发展方面取得了进展,但照料者在支持患有精神疾病的人时,其自身的幸福仍面临相当大的挑战。

相似文献

1
Quality of Life and Social Isolation Among Caregivers of Adults with Schizophrenia: Policy and Outcomes.精神分裂症成年患者照料者的生活质量与社会隔离:政策与结果
Community Ment Health J. 2015 Jul;51(5):591-7. doi: 10.1007/s10597-015-9848-6. Epub 2015 Feb 18.
2
A longitudinal population-based study of carers of people with psychosis.一项针对精神疾病患者照顾者的纵向基于人群的研究。
Epidemiol Psychiatr Sci. 2017 Jun;26(3):265-275. doi: 10.1017/S2045796015001195. Epub 2016 Feb 5.
3
A longitudinal study of the health and wellbeing of culturally and linguistically diverse caregivers of people with psychosis in Australia.澳大利亚文化和语言多样化的精神疾病患者照顾者健康和福利的纵向研究。
Int J Soc Psychiatry. 2015 Dec;61(8):743-53. doi: 10.1177/0020764015577843. Epub 2015 Apr 2.
4
Caregiving, Employment and Social Isolation: Challenges for Rural Carers in Australia.照料、就业和社会孤立:澳大利亚农村照料者面临的挑战。
Int J Environ Res Public Health. 2018 Oct 16;15(10):2267. doi: 10.3390/ijerph15102267.
5
Social exclusion in adult informal carers: A systematic narrative review of the experiences of informal carers of people with dementia and mental illness.成人非正规护理者的社会排斥:对痴呆症和精神疾病患者非正规护理者的经历进行系统叙述性综述。
Maturitas. 2018 Jun;112:39-45. doi: 10.1016/j.maturitas.2018.03.011. Epub 2018 Mar 29.
6
Family carers' experience of caring for an older parent with severe and persistent mental illness.家庭照顾者照顾患有严重且持续性精神疾病的老年父母的经历。
Int J Ment Health Nurs. 2015 Jun;24(3):203-12. doi: 10.1111/inm.12135. Epub 2015 May 11.
7
Psychological distress among carers and the moderating effects of social support.照顾者的心理困扰及社会支持的调节作用。
BMC Psychiatry. 2020 Apr 6;20(1):154. doi: 10.1186/s12888-020-02571-7.
8
A structured multicomponent group programme for carers of people with acquired brain injury: Effects on perceived criticism, strain, and psychological distress.一项针对后天性脑损伤患者照料者的结构化多成分团体项目:对感知到的批评、压力和心理困扰的影响。
Br J Health Psychol. 2016 Feb;21(1):224-43. doi: 10.1111/bjhp.12159. Epub 2015 Aug 28.
9
EUROCARE: a cross-national study of co-resident spouse carers for people with Alzheimer's disease: I--Factors associated with carer burden.欧洲癌症和其他慢性病长期生存、预后及治疗结果研究(EUROCARE):一项针对阿尔茨海默病患者同住配偶照料者的跨国研究:I——与照料者负担相关的因素
Int J Geriatr Psychiatry. 1999 Aug;14(8):651-61.
10
Effect of perceived stigmatization on the quality of life among ageing female family carers: a comparison of carers of adults with intellectual disability and carers of adults with mental illness.感知到的污名化对老年女性家庭照顾者生活质量的影响:智障成年人照顾者与精神疾病成年人照顾者的比较
J Intellect Disabil Res. 2009 Jul;53(7):654-64. doi: 10.1111/j.1365-2788.2009.01173.x. Epub 2009 Apr 9.

引用本文的文献

1
: Participatory Action Research with family carers and a Recovery College.与家庭照顾者及康复学院开展的参与式行动研究
Front Psychiatry. 2025 Aug 15;16:1607560. doi: 10.3389/fpsyt.2025.1607560. eCollection 2025.
2
Psychoeducation for Caregivers of Individuals With Borderline Personality Disorder: A Randomized Controlled Trial of Multiple Family Group Therapy.边缘型人格障碍患者照顾者的心理教育:多家庭团体治疗的随机对照试验
Personal Ment Health. 2025 Aug;19(3):e70029. doi: 10.1002/pmh.70029.
3
Social alienation and influencing factors among caregivers of stroke patients in China: a cross-sectional study.

本文引用的文献

1
Family psycho-education for people with schizophrenia and other psychotic disorders and their families.为精神分裂症及其他精神障碍患者及其家属提供的家庭心理教育。
Aust N Z J Psychiatry. 2013 Jun;47(6):516-20. doi: 10.1177/0004867413476754. Epub 2013 Feb 7.
2
Partnerships for better mental health worldwide: WPA recommendations on best practices in working with service users and family carers.全球改善心理健康的伙伴关系:世界心理卫生联合会关于与服务使用者和家属合作的最佳实践建议。
World Psychiatry. 2011 Oct;10(3):229-36. doi: 10.1002/j.2051-5545.2011.tb00062.x.
3
Expecting a good quality of life in health: assessing people with diverse diseases and conditions using the WHOQOL-BREF.
中国脑卒中患者照顾者的社会疏离感及其影响因素:一项横断面研究
Front Psychiatry. 2025 Jun 5;16:1544692. doi: 10.3389/fpsyt.2025.1544692. eCollection 2025.
4
Quality of Life in Caregivers of Patients with Schizophrenia: A Systematic Review of the Impact of Sociodemographic, Clinical, and Psychological Factors.精神分裂症患者照料者的生活质量:社会人口学、临床及心理因素影响的系统评价
Behav Sci (Basel). 2025 May 17;15(5):684. doi: 10.3390/bs15050684.
5
Understanding the experiences of family, friends and carers attending Recovery Colleges: focus group study.了解参加康复学院的家人、朋友和护理人员的经历:焦点小组研究。
BJPsych Open. 2025 Mar 11;11(2):e43. doi: 10.1192/bjo.2024.852.
6
Experiences of participation in an education and support group for carers of people with longer-term psychosis: a qualitative study.参与长期精神病患者照料者教育与支持小组的经历:一项定性研究
BMC Psychol. 2025 Feb 21;13(1):153. doi: 10.1186/s40359-024-02288-2.
7
Commentary: Experiences of being cared-for: the perspective of an expert-by-experience in mental health.评论:被照顾的经历:心理健康领域有亲身经历者的视角
Front Psychiatry. 2024 Oct 4;15:1460365. doi: 10.3389/fpsyt.2024.1460365. eCollection 2024.
8
The impact of informal care provision on the quality of life of adults caring for persons with mental health problems: A cross-sectional assessment of caregiver quality of life.非正式护理服务对照顾有心理健康问题者的成年人生活质量的影响:照顾者生活质量的横断面评估
Health Psychol Open. 2024 Aug 6;11:20551029241262883. doi: 10.1177/20551029241262883. eCollection 2024 Jan-Dec.
9
Leo program, a short multi-family skill-based psychoeducational program for caregivers of relatives living with a severe mental disorder: a retrospective pilot study.利奥项目,一项针对患有严重精神障碍亲属的照料者的简短多家庭技能型心理教育项目:一项回顾性试点研究。
Front Psychiatry. 2024 May 9;15:1374540. doi: 10.3389/fpsyt.2024.1374540. eCollection 2024.
10
Changes in Psychosocial Variables Among Caregivers of Patients With Schizophrenia: A Short-Term Follow-Up Study.精神分裂症患者照料者心理社会变量的变化:一项短期随访研究。
Cureus. 2024 Mar 10;16(3):e55887. doi: 10.7759/cureus.55887. eCollection 2024 Mar.
期望健康的生活质量:使用 WHOQOL-BREF 评估患有各种疾病和状况的人。
Health Expect. 2012 Mar;15(1):49-62. doi: 10.1111/j.1369-7625.2010.00650.x. Epub 2011 Jan 31.
4
An evaluation of Well Ways, a family education programme for carers of people with a mental illness.对 Well Ways 的评价,这是一个针对精神疾病患者照顾者的家庭教育计划。
Aust N Z J Psychiatry. 2011 Jan;45(1):45-53. doi: 10.3109/00048674.2010.522170. Epub 2010 Nov 24.
5
Who cares? A profile of people who care for relatives with a mental disorder.谁在乎呢?关注照顾精神障碍亲属人群的画像。
Aust N Z J Psychiatry. 2010 Oct;44(10):929-37. doi: 10.3109/00048674.2010.493858.
6
Family caregiving and emotional strain: associations with quality of life in a large national sample of middle-aged and older adults.家庭照料与情绪压力:在一个大型全国中年及老年成年人样本中与生活质量的关联
Qual Life Res. 2009 Aug;18(6):679-88. doi: 10.1007/s11136-009-9482-2. Epub 2009 May 7.
7
Burden on caregivers of people with schizophrenia: comparison between Germany and Britain.精神分裂症患者照料者的负担:德国与英国的比较
Br J Psychiatry. 2007 Apr;190:333-8. doi: 10.1192/bjp.bp.106.025353.
8
Impact of patient confidentiality on carers of people who have a mental disorder.患者保密对精神障碍患者照料者的影响。
Int J Ment Health Nurs. 2005 Sep;14(3):166-71. doi: 10.1111/j.1440-0979.2005.00377.x.
9
Barriers to family care in psychiatric settings.精神科环境中家庭护理的障碍。
J Nurs Scholarsh. 2004;36(1):39-47. doi: 10.1111/j.1547-5069.2004.04009.x.
10
People with schizophrenia in five countries: conceptual similarities and intercultural differences in family caregiving.五个国家中精神分裂症患者的家庭照料:概念上的相似性与跨文化差异
Schizophr Bull. 2003;29(3):573-86. doi: 10.1093/oxfordjournals.schbul.a007029.