West Christina H, Bell Janice M, Woodgate Roberta L, Moules Nancy J
University of Manitoba, Winnipeg, Canada The Children's Hospital Research Institute of Manitoba, Winnipeg, Canada
University of Calgary, Alberta, Canada.
J Fam Nurs. 2015 May;21(2):261-94. doi: 10.1177/1074840715576795. Epub 2015 Mar 20.
The illness suffering of families in childhood cancer is characterized in part by a loss of family normalcy. Hermeneutic phenomenology and family process research methods were used to analyze videotaped family intervention sessions and post-intervention family/clinician interviews. Within this article, some of the findings from the larger doctoral study that focused on the illness suffering of family members and relational, family systems intervention based on the Illness Beliefs Model are described. Although the larger study included findings of family interventions that addressed several aspects of the illness suffering experienced, this article details specific findings related to the theme of the loss of family normalcy and a longing to return home. Family systems intervention practices which facilitated a lessening of illness suffering included the following: offering new interpretations of suffering within a reflecting team, articulating family strength, sensitively acknowledging the illness suffering, and eliciting the experiences of family members in a shared therapeutic conversation.
儿童癌症患者家庭所遭受的病痛，部分特征表现为家庭失去常态。运用诠释现象学和家庭过程研究方法，对家庭干预录像片段以及干预后的家庭/临床医生访谈进行分析。本文描述了一项规模更大的博士研究的部分发现，该研究聚焦于家庭成员的病痛以及基于疾病信念模型的关系性家庭系统干预。尽管规模更大的研究涵盖了针对所经历病痛多个方面的家庭干预结果，但本文详细阐述了与家庭失去常态和渴望回家这一主题相关的具体发现。有助于减轻病痛的家庭系统干预实践包括：在反思团队中对痛苦提供新的解读、阐明家庭优势、敏感地承认病痛、以及在共同的治疗对话中引出家庭成员的经历。
