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癌症患者伴侣及照料者支持性照护需求调查问卷德文版(SCNS-P&C-G)的心理测量学评估。

Psychometric evaluation of the German Version of the Supportive Care Needs Survey for Partners and Caregivers (SCNS-P&C-G) of cancer patients.

作者信息

Sklenarova H, Haun M W, Krümpelmann A, Friederich H-C, Huber J, Thomas M, Winkler E C, Girgis A, Dinkel A, Herzog W, Hartmann M

机构信息

Department of General Internal Medicine & Psychosomatics, Heidelberg University Hospital, D-69120, Heidelberg, Germany.

Department of Urology, University Hospital Carl Gustav Carus, Technical University of Dresden, Dresden, 01307, Germany.

出版信息

Eur J Cancer Care (Engl). 2015 Nov;24(6):884-97. doi: 10.1111/ecc.12325. Epub 2015 May 5.

Abstract

This study aimed for psychometric validation of the German version of the Supportive Care Needs Survey for Partners and Caregivers (SCNS-P&C-G). In- and outpatients with lung, urological and gastrointestinal cancer at Heidelberg University Hospital in Germany and in each case one relevant caregiver were asked to complete a set of questionnaires assessing their unmet needs together with distress, depression, anxiety and caregiver strain. In addition, medical data of the patients were collected. Fully completed questionnaires were received from 188 pairs of patients and their caregivers. Using exploratory factor analysis, four domains of unmet needs were identified with an appropriate variance explanation (58.7%) and acceptable (>0.70) internal consistencies (α = 0.95 to 0.76) for each domain. Convergent validity was found with respect to significant positive correlations (>0.40) of the SCNS-P&C-G domains with caregivers' anxiety, depression and strain. Although poorer health status of the patient indicated more unmet caregiver needs, this finding was not consistent for all need domains. Overall, associations were only moderate to weak pointing out the necessity of a separate screening for caregivers' needs. The findings of this study support that the SCNS-P&C-G is an appropriate research instrument to assess caregivers' needs on different domains throughout the disease trajectory.

摘要

本研究旨在对《伴侣及照料者支持性护理需求调查问卷》德文版(SCNS-P&C-G)进行心理测量学验证。德国海德堡大学医院的肺癌、泌尿系统癌和胃肠道癌的门诊及住院患者,以及各自的一名相关照料者被要求完成一套问卷,以评估他们未满足的需求以及痛苦、抑郁、焦虑和照料者负担。此外,还收集了患者的医疗数据。共收到188对患者及其照料者填写完整的问卷。通过探索性因素分析,确定了未满足需求的四个领域,各领域具有适当的方差解释率(58.7%)和可接受的(>0.70)内部一致性(α=0.95至0.76)。发现SCNS-P&C-G各领域与照料者的焦虑、抑郁和负担之间存在显著正相关(>0.40),具有收敛效度。虽然患者较差的健康状况表明照料者未满足的需求更多,但这一发现并非在所有需求领域都一致。总体而言,相关性仅为中度至低度,表明有必要对照料者的需求进行单独筛查。本研究结果支持SCNS-P&C-G是一种合适的研究工具,可用于评估疾病全过程中照料者在不同领域的需求。

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