Leino Mauri, Mustonen Anssi, Mattila Kalle, Koulu Leena, Tuominen Risto
Department of Dermatology, Turku University Hospital and University of Turku, Turku, Finland,
Dermatol Ther (Heidelb). 2015 Jun;5(2):107-16. doi: 10.1007/s13555-015-0076-3. Epub 2015 May 5.
Previous studies have shown that psoriasis has a significant effect on patients' health-related quality of life. The impact of psoriasis on household chores and the need for assistance with such tasks are not well documented. The aim of this study was to estimate the impact of psoriasis on the ability to carry out household chores, the time spent on skin care at home and the assistance that patients with psoriasis require with these activities.
In a questionnaire study 262 patients with moderate-to-severe psoriasis, visiting a tertiary level dermatological clinic during a 1-year study period, listed household chores which they considered were particularly affected by psoriasis. This was done without a predefined list of chores. Questions on their ability to perform household chores as well as time spent on skin care at home were asked. The need for outside assistance with household chores and help received were also determined.
More than half of the patients (57.8%) reported difficulties with household chores because of psoriasis. Psoriasis affected a wide range of everyday household activities, with physically demanding tasks and those involving contact with water mentioned most often. Most of the patients (84.6%) reported that they have increased the time spent on skin care because of psoriasis, on average by 87 min per week. A quarter of patients received assistance in household chores. Women received more assistance than men (p < 0.01). The need for additional assistance was reported by a fifth of patients, women more often than men (p < 0.05).
When estimating the overall burden of psoriasis, considering only the economic and productivity consequences may underestimate the impact of the disease. The impact on everyday life events such as the ability to perform household chores should also be taken into account.
This study was supported by unconditional grants from the research funds of the Hospital District of Southwest Finland. Hospital District of Southwest Finland's research permission K44/10/EVO13043.
先前的研究表明，银屑病对患者与健康相关的生活质量有显著影响。银屑病对家务劳动的影响以及进行此类任务所需的帮助尚未得到充分记录。本研究的目的是评估银屑病对进行家务劳动能力、在家进行皮肤护理所花费的时间以及银屑病患者在这些活动中所需帮助的影响。
在一项问卷调查研究中，262例中重度银屑病患者在为期1年的研究期间前往三级皮肤科门诊就诊，列出他们认为受银屑病影响特别大的家务劳动。这是在没有预先确定的家务清单的情况下完成的。询问了他们进行家务劳动的能力以及在家进行皮肤护理所花费的时间。还确定了家务劳动所需的外部帮助以及获得的帮助。
超过一半的患者（57.8%）报告因银屑病而在做家务方面存在困难。银屑病影响了广泛的日常家务活动，体力要求高的任务以及涉及接触水的任务被提及得最为频繁。大多数患者（84.6%）报告说，由于银屑病，他们增加了皮肤护理的时间，平均每周增加87分钟。四分之一的患者在做家务方面得到了帮助。女性得到的帮助比男性更多（p<0.01）。五分之一的患者报告需要额外帮助，女性比男性更频繁（p<0.05）。
在评估银屑病的总体负担时，仅考虑经济和生产力后果可能会低估该疾病的影响。还应考虑对日常生活事件的影响，如进行家务劳动的能力。
本研究得到了芬兰西南部医院区研究基金的无条件资助。芬兰西南部医院区的研究许可K44/10/EVO13043。
