Span Marijke, Smits Carolien, Jukema Jan, Groen-van de Ven Leontine, Janssen Ruud, Vernooij-Dassen Myrra, Eefsting Jan, Hettinga Marike
Research Group Innovation of Care of Older Adults, Windesheim University of Applied Sciences , Zwolle , Netherlands.
Research Group IT Innovation in Health Care, Windesheim University of Applied Sciences , Zwolle , Netherlands.
Front Aging Neurosci. 2015 Jul 7;7:128. doi: 10.3389/fnagi.2015.00128. eCollection 2015.
An interactive web tool has been developed for facilitating shared decision-making in dementia-care networks. The DecideGuide provides a chat function for easier communication between network members, a deciding together function for step-by-step decision-making, and an individual opinion function for eight dementia-related life domains. The aim of this study was to gain insight in the user friendliness of the DecideGuide, user acceptance and satisfaction, and participants' opinion of the DecideGuide for making decisions.
A 5-month field study included four dementia-care networks (19 participants in total). The data derived from structured interviews, observations, and information that participants logged in the DecideGuide. Structured interviews took place at the start, middle, and end of the field study with people with dementia, informal caregivers, and case managers. Four observations of case managers' home visits focused on members' responses and use of the tool.
(1) The user friendliness of the chat and individual opinion functions was adequate for case managers and most informal caregivers. Older participants, with or without dementia, had some difficulties using a tablet and the DecideGuide. The deciding together function does not yet provide adequate instructions for all. The user interface needs simplification. (2) User acceptance and satisfaction: everybody liked the chat's easy communication, handling difficult issues for discussion, and the option of individual opinions. (3) The DecideGuide helped participants structure their thoughts. They felt more involved and shared more information about daily issues than they had done previously.
Participants found the DecideGuide valuable in decision-making. The chat function seems powerful in helping members engage with one another constructively. Such engagement is a prerequisite for making shared decisions. Regardless of participants' use of the tool, they saw the DecideGuide's added value.
已开发出一种交互式网络工具，以促进痴呆症护理网络中的共同决策。“决策指南”提供了聊天功能，便于网络成员之间进行交流；提供了共同决策功能，用于逐步做出决策；还提供了针对八个与痴呆症相关生活领域的个人意见功能。本研究的目的是深入了解“决策指南”的用户友好性、用户接受度和满意度，以及参与者对“决策指南”用于决策的看法。
一项为期5个月的实地研究纳入了四个痴呆症护理网络（共19名参与者）。数据来源于结构化访谈、观察以及参与者在“决策指南”中记录的信息。在实地研究开始、中期和结束时，对痴呆症患者、非正式护理人员和个案管理人员进行了结构化访谈。对个案管理人员家访进行了四次观察，重点关注成员对该工具的反应和使用情况。
（1）聊天和个人意见功能的用户友好性对于个案管理人员和大多数非正式护理人员来说是足够的。有或没有痴呆症的老年参与者在使用平板电脑和“决策指南”时存在一些困难。共同决策功能尚未为所有人提供足够的指导。用户界面需要简化。（2）用户接受度和满意度：每个人都喜欢聊天的便捷交流、处理讨论中的难题以及个人意见选项。（3）“决策指南”帮助参与者整理思路。他们感觉比以前更有参与感，并且分享了更多关于日常问题的信息。
参与者发现“决策指南”在决策中很有价值。聊天功能似乎在帮助成员进行建设性互动方面很强大。这种互动是做出共同决策的先决条件。无论参与者是否使用该工具，他们都看到了“决策指南”的附加价值。
