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让社区参与决定他们在跨国研究中获得的益处。

Involving Communities in Deciding What Benefits They Receive in Multinational Research.

作者信息

Wendler David, Shah Seema

机构信息

National Institutes of Health, Bethesda, Maryland, USA National Institutes of Health, Bethesda, Maryland, USA

National Institutes of Health, Bethesda, Maryland, USA National Institutes of Health, Bethesda, Maryland, USA.

出版信息

J Med Philos. 2015 Oct;40(5):584-600. doi: 10.1093/jmp/jhv017. Epub 2015 Jul 29.

Abstract

There is wide agreement that communities in lower-income countries should benefit when they participate in multinational research. Debate now focuses on how and to what extent these communities should benefit. This debate has identified compelling reasons to reject the claim that whatever benefits a community agrees to accept are necessarily fair. Yet, those who conduct clinical research may conclude from this rejection that there is no reason to involve communities in the process of deciding how they benefit. Against this possibility, the present manuscript argues that involving host communities in this process helps to promote four important goals: (1) protecting host communities, (2) respecting host communities, (3) promoting transparency, and (4) enhancing social value.

摘要

人们普遍认为,低收入国家的社区在参与跨国研究时应从中受益。现在的争论焦点在于这些社区应如何受益以及在多大程度上受益。这场争论已经找出了令人信服的理由,来驳斥那种认为社区同意接受的任何利益必然是公平的说法。然而,从事临床研究的人员可能会从这种驳斥中得出结论,认为没有理由让社区参与决定自身如何受益的过程。针对这种可能性,本手稿认为让东道社区参与这一过程有助于实现四个重要目标:(1)保护东道社区,(2)尊重东道社区,(3)促进透明度,以及(4)提高社会价值。

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