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白癜风患者的生活质量:过去二十年皮肤病生活质量指数结果分析

Quality of life in patients with vitiligo: an analysis of the dermatology life quality index outcome over the past two decades.

作者信息

Amer Abdulrahman A A, Gao Xing-Hua

机构信息

Department of Dermatology, No. 1 Hospital of China Medical University, Shenyang, China.

出版信息

Int J Dermatol. 2016 Jun;55(6):608-14. doi: 10.1111/ijd.13198. Epub 2016 Jan 8.

DOI:10.1111/ijd.13198
PMID:26749040
Abstract

Vitiligo is one of the most important skin disorders that does not cause much physical impairment, but due to its disfiguring appearance, patients have disturbances in mental health and quality of life (QoL). The dermatology life quality index (DLQI), as one of the most specific QoL instruments, is now used widely for patients with vitiligo. The main objective of this review is to collect and present detailed information about issues and disturbances related to the QoL of patients with vitiligo by reviewing the DLQI studies worldwide in the past 20 years. The impact of vitiligo assessed by the DLQI varies according to the clinical and demographic characteristics of patients. In the majority of our reviewed studies, women showed more QoL impairment than men did, as did young patients compared to elderly ones, married women with vitiligo than singles, and patients with involvement on exposed sites than those on unexposed sites. Dark-skinned people showed more life quality effects than white people did. Dermatologists should pay particular attention to such patients who experience insufficient QoL, as they require more effort to cure their disease.

摘要

白癜风是最重要的皮肤疾病之一,虽不会造成太多身体损伤,但因其毁容性外观,患者存在心理健康问题及生活质量(QoL)受扰情况。皮肤病生活质量指数(DLQI)作为最具针对性的生活质量评估工具之一,目前在白癜风患者中广泛应用。本综述的主要目的是通过回顾过去20年全球范围内的DLQI研究,收集并呈现有关白癜风患者生活质量相关问题和干扰的详细信息。通过DLQI评估的白癜风影响因患者的临床和人口统计学特征而异。在我们回顾的大多数研究中,女性的生活质量受损程度高于男性,年轻患者高于老年患者,患白癜风的已婚女性高于单身女性,暴露部位受累的患者高于未暴露部位的患者。肤色较深的人比白人的生活质量受影响更大。皮肤科医生应特别关注那些生活质量不佳的患者,因为治愈他们的疾病需要付出更多努力。

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