Raheel Mohamed Faraj Saleh, Snoubar Yaser, Mosbah Wafa Saleh
Department of Social Sciences, College of Arts and Sciences, Qatar University, Doha, 2713, Qatar.
Faculty of Medicine, Benghazi University, Benghazi, Libya.
Biopsychosoc Med. 2024 Jan 10;18(1):1. doi: 10.1186/s13030-024-00299-4.
This study aims to assess the influence of vitiligo illness on the quality of life of female individuals residing in Ajdabiya, Libya. Through this investigation, we aim to enhance our comprehension of the potential impact of cultural norms and conventional gender roles on managing and caring for skin disorders within a North African society. Over a 20-week period, 65 female participants diagnosed with vitiligo were recruited. The participants' quality of life was assessed using the Skindex-16 scale. This validated tool measures the impact of skin disease on several aspects of an individual's life, including physical, emotional, and social well-being. The findings of this study indicate that the quality of life of women with vitiligo significantly differed with age, social and functional status, and economic status. However, the illness profoundly impacted patients' lives emotionally, with clear consequences, including diminished emotional satisfaction and reduced social participation. The results of this study highlight the negative effects that vitiligo disease can have on women's quality of life within traditional Libyan society. This investigation also indicates that cultural norms and traditional gender patterns may contribute to these effects.
本研究旨在评估白癜风疾病对居住在利比亚艾季达比耶的女性个体生活质量的影响。通过这项调查，我们旨在加深对文化规范和传统性别角色在北非社会中对皮肤疾病管理和护理的潜在影响的理解。在20周的时间里，招募了65名被诊断患有白癜风的女性参与者。使用Skindex - 16量表评估参与者的生活质量。这个经过验证的工具测量皮肤疾病对个人生活多个方面的影响，包括身体、情感和社会幸福感。本研究结果表明，白癜风女性患者的生活质量在年龄、社会和功能状况以及经济状况方面存在显著差异。然而，该疾病在情感上对患者的生活产生了深远影响，产生了明显的后果，包括情感满意度下降和社会参与度降低。本研究结果凸显了白癜风疾病对利比亚传统社会中女性生活质量可能产生的负面影响。这项调查还表明，文化规范和传统性别模式可能导致了这些影响。
