Philip Errol J, Merluzzi Thomas V
a The Notre Dame Lab for Psycho-oncology Research, University of Notre Dame , Notre Dame , IN , USA.
b Department of Psychology , University of Notre Dame , Notre Dame , IN , USA.
J Psychosoc Oncol. 2016 May-Jun;34(3):223-39. doi: 10.1080/07347332.2016.1157716. Epub 2016 Mar 3.
The ongoing and late effects of cancer treatment can interfere with quality of life and adoption of healthy behaviors, thus potentially impairing recovery and survival. Developing effective methods to identify individuals in need of support is crucial in providing comprehensive, ongoing care and ensuring optimal use of limited resources. The current study provides an examination of long-term survivors' reports of psychosocial issues, their desire for follow-up, and the role of widely used distress-screening measures for identifying survivors who desire help.
317 cancer survivors (M age = 62.98 years, female = 70%, Md years since treatment = 7.5 years, mixed diagnoses) completed measures of psychosocial adjustment and quality of life as well as a checklist of psychosocial issues on which they indicated whether they would like to speak with a health professional regarding each issue.
Participants reported an average of 1.7 psychosocial issues. Only a minority desired to speak to a health professional; however, those desiring follow-up reported significant impairments in adjustment and quality of life. Though far from adequate as a stand-alone measure, area under the curve and regression analysis suggested a combination of the distress thermometer and number of psychosocial issues may be the best assessment of those desiring follow-up assistance.
These results indicate that there is a need for a more sophisticated system of assisting survivors that takes into account issues, symptoms, and motivation for help. The present study is important in guiding the development of effective survivorship care and contributing to the growing literature describing the adjustment and care needs of survivors.
癌症治疗的近期和远期影响可能会干扰生活质量以及健康行为的养成,从而可能损害康复和生存。开发有效的方法来识别需要支持的个体,对于提供全面、持续的护理以及确保有限资源的最佳利用至关重要。本研究对长期幸存者关于心理社会问题的报告、他们对随访的需求以及广泛使用的痛苦筛查措施在识别需要帮助的幸存者方面的作用进行了考察。
317名癌症幸存者(平均年龄 = 62.98岁,女性占70%,治疗后平均年限 = 7.5年,诊断类型多样)完成了心理社会适应和生活质量测量,以及一份心理社会问题清单,他们在清单上表明是否愿意就每个问题与健康专业人员交谈。
参与者报告的心理社会问题平均为1.7个。只有少数人希望与健康专业人员交谈;然而,那些希望接受随访的人在适应和生活质量方面报告有明显损害。虽然作为单独的测量方法远远不够,但曲线下面积和回归分析表明,痛苦温度计和心理社会问题数量的组合可能是对那些需要随访帮助者的最佳评估。
这些结果表明,需要一个更完善的系统来帮助幸存者,该系统要考虑到问题、症状和寻求帮助的动机。本研究对于指导有效的幸存者护理发展以及为描述幸存者的适应和护理需求的不断增长的文献做出贡献具有重要意义。