Heeney Catherine
Science, Technology, and Innovation Studies, School of Social and Political Science, Edinburgh University, Edinburgh, UK.
Sci Technol Human Values. 2017 Jan;42(1):3-28. doi: 10.1177/0162243916648220. Epub 2016 May 13.
This study draws on interviews with forty-nine members of a biomedical research community in the UK that is involved in negotiating data sharing and access. During an interview, an interviewee used the words "ethical moment" to describe a confrontation between collaborators in relation to data sharing. In this article, I use this as a lens for thinking about relations between "the conceptual and the empirical" in a way that allows both analyst and actor to challenge the status quo and consider other ethical possibilities. Drawing on actor network theory (ANT), I approach "the empirical" using the concepts of controversy and ontological uncertainty as methodological tools to tackle the problem of ethics. I suggest that these concepts also provide a bridge for understanding the ontological structure of the virtual and the actual, as described in Deleuze's . While other science and technology studies scholars have sought to draw on Deleuze, this article addresses the integration of ethics and empirical research. It arises as a critical reaction to existing treatments of this problem as found in empirical ethics, especially in the sociology of bioethics, and indirectly in ANT texts.
本研究基于对英国一个生物医学研究群体中49名成员的访谈，该群体参与数据共享与获取的协商。在一次访谈中，一名受访者用“伦理时刻”来描述合作者之间在数据共享方面的冲突。在本文中，我以此为视角来思考“概念与实证”之间的关系，这种方式能让分析者和行动者都对现状提出质疑，并考虑其他伦理可能性。借鉴行动者网络理论（ANT），我将争议和本体论不确定性的概念作为方法论工具来处理伦理问题，以此探讨“实证”。我认为这些概念也为理解如德勒兹所描述的虚拟与现实的本体论结构提供了桥梁。虽然其他科学技术研究学者试图借鉴德勒兹的理论，但本文关注的是伦理与实证研究的整合。它是对实证伦理学中，尤其是生物伦理学社会学以及ANT文本中间接出现的对该问题现有处理方式的批判性回应。
